European Neurofibromatosis Meeting 2020
26 November 2020
This year's meeting is to be virtual, and so you are invited to join the public day, Saturday 12 December.
"This day is meant for people with NF and their parents/caretakers from a social perspective, but also health care professionals, paramedics and all interested in NF. The importance of the ‘Public Day’ comes from the complexity of conditions related to NF, unknown and misunderstood, with difficulty to inform on developments in NF."
The registration fee is €25.00
The European NF meeting is a key platform for established as well as starting professionals in NF research and clinical care. Health professionals, researchers and patients from all over the world, including members of the Nerve Tumours UK Medical Advisory Board: Professor Gareth Evans, Chair; Professor Rosalie Ferner, and Dr Shruti Garg will join the online conference and exchange knowledge and ideas and establish new collaborations. Bringing together all different disciplines involved in NF research and care, the European NF meeting offers a forum for advancing basic, translational and clinical research in NF and related fields, with one purpose: to improve the quality of life of NF patients.
Prof Gareth Evans
Prof Rosalie Ferner
Dr Shruti Garg --
The 19th European Neurofibromatosis meeting is organized by the Erasmus MC national NF1 Expertise (ENCORE) and the patient organization for neurofibromatosis in the Netherlands (NFVN).
Filter News
Deacons Marina’s fun filled fundraiser for NTUK
Find out more about the successful and well received fundraising event here:
Read MoreLive Wrestling in aid of Nerve Tumours UK!
Find out more about the brand new unique funraising event here:
Read MoreTalking about Neurofibromatosis A Guide for Teens
A new brochure aimed at helping teens with NF has been released by St Louis hospital. Find it here:
Read MoreFamily Lives Charity
Find out more about the charity that is dedicated to supporting those in all aspects of family life
Read MoreAll Aboard the Blatchington Branch Fundraiser for NTUK!
Find out more about the miniature railway that has raised money for NTUK
Read MoreSharon’s Story
Sharon has recently applied to run the London Marathon for NTUK, here she tells us a bit more about her experiences with NF
Read MoreParticipant Experiences of the 100,000 Genomes Project
Read more about participant's experiences of partaking in the study that sequenced 100,000 genomes from around 85,000 people
Read MoreMeet our ASICS London 10k runners
Good luck to all our runners taking part in the British ASICS 10K this Sunday!
Read More