European Neurofibromatosis Meeting 2020
26 November 2020
![](/images/made/images/common/NF2020-name-block3_800_300_s_c1.jpg)
This year's meeting is to be virtual, and so you are invited to join the public day, Saturday 12 December.
"This day is meant for people with NF and their parents/caretakers from a social perspective, but also health care professionals, paramedics and all interested in NF. The importance of the ‘Public Day’ comes from the complexity of conditions related to NF, unknown and misunderstood, with difficulty to inform on developments in NF."
The registration fee is €25.00
The European NF meeting is a key platform for established as well as starting professionals in NF research and clinical care. Health professionals, researchers and patients from all over the world, including members of the Nerve Tumours UK Medical Advisory Board: Professor Gareth Evans, Chair; Professor Rosalie Ferner, and Dr Shruti Garg will join the online conference and exchange knowledge and ideas and establish new collaborations. Bringing together all different disciplines involved in NF research and care, the European NF meeting offers a forum for advancing basic, translational and clinical research in NF and related fields, with one purpose: to improve the quality of life of NF patients.
![](/images/made/images/common/gareth-evans_800x700px_1_500_438_s_c1.jpg)
Prof Gareth Evans
![](/images/made/images/common/rosalie-ferner_800x700px_1_500_438_s_c1.jpg)
Prof Rosalie Ferner
![](/images/made/images/common/shruti-garg_800x700px_1_500_438_s_c1.jpg)
Dr Shruti Garg --
The 19th European Neurofibromatosis meeting is organized by the Erasmus MC national NF1 Expertise (ENCORE) and the patient organization for neurofibromatosis in the Netherlands (NFVN).
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Northern-ireland-shave-offPage-Preview-800-x-500-px_800_600_s_c1.png)
“Charity Shave Off” for NF in Northern Ireland
Janice and her family recently held a charity shave off in Northern Ireland. Find out more about the event here:
Read More![](https://nervetumours.org.uk/images/made/images/common/blackpool-tower-blackpool-magic-conventionPage-Preview-800-x-500-px_800_600_s_c1.png)
Blackpool Magic Convention 2020
Find out more about the convention in aid of NTUK and how you can get involved here:
Read More![](https://nervetumours.org.uk/images/made/images/common/2019-reviewPage-Preview-800-x-500-px_800_600_s_c1.png)
Reflections on 2019
Check out our reflection on what we feel was an incredibly succesful 2019 for the charity:
Read More![](https://nervetumours.org.uk/images/made/images/common/helen-and-pauline-Page-Preview-800-x-500-px_800_600_s_c1.png)
Helen’s Story as told by her Mum Pauline
Due to her NF1, Helen has faced several struggles. Mum Pauline has openly shared her daughter's experiences with us here:
Read More![](https://nervetumours.org.uk/images/made/images/common/NicolaPage-Preview-800-x-500-px_800_600_s_c1.png)
Nicola’s NF2 Journey
Nicola creates her own YouTube videos to help promote NF2 awareness. Find out more about her NF2 journey here:
Read More![](https://nervetumours.org.uk/images/made/images/common/James-partidge-article-novemberPage-Preview-800-x-500-px_800_600_s_c1.png)
Making the Future of Work inclusive of persons with disability
Check out James' recent presentation at a conference in Geneva highlighting issues of "face equality" in the workplace
Read More![](https://nervetumours.org.uk/images/made/images/common/carolynPage-Preview-800-x-500-px_800_600_s_c1.png)
The Royal Society - A Quest for the perfect Human…? A debate on the implications of human genome editing
Find out more about the debate recently undertaken at The Royal Society here:
Read More![](https://nervetumours.org.uk/images/made/images/common/CARDesktop-1600-x-900-px-copy_800_600_s_c1.png)
Appearance Matters: Prof Diana Harcourt and Maia Thornton
Find out both Diana's and Maia's views on their work and the importance of their work for people with NF:
Read More![](https://nervetumours.org.uk/images/made/images/common/Jane-francesPage-Preview-800-x-500-px_800_600_s_c1.png)
Jane Frances
Here Jane Frances tells us how findings from psychological research can help parents and teachers of children with NF
Read More