Helpline 07939 046 030

DrugStar Pearl Kelly

07 January 2021

Pearl from Liverpool, who has NF1, amongst a variety of other complex conditions, is one of our many active fundraisers and supporters within our NF community. She receives treatment for her NF at St. Mary’s Hospital in Manchester and is often visiting specialists around the region for her other conditions. When we asked our community to sign up to use the DrugStar App, Pearl gladly joined.

With every medication she took, she gained one Star, this meant a 1p donation for Nerve Tumours UK, which over a year culminated to a significant amount

Pearl is a huge Everton fan! She knows the team & Chairman, both of whom who supported her by buying her an electric wheelchair.

"Thank you to the chairman, Bill Kenwright and Leighton Baines of the Everton Football Club for supporting me, those affected by Neurofibromatosis in the UK, and integrating me into the Everton team as half-pint! Keep kicking!" 

In her own words Pearl says: “I am close to bed-bound and this is a way I can still fundraise and give back. It does not cost me anything, I get reminders and I simply do not forget to take my medication”

Why not follow Pearl’s example and join Drugstars

Here is how this works

Simply download the app and when you purchase your regular medical prescription you earn rewards that can be exchanged as free donations. Select Nerve Tumours UK to donate your rewards to and we receive cash donations on your behalf.

Drugstars also has a patient forum where you can hear experiences from other patients just like you about the medication you are taking. More than 400,000 patients worldwide have reviewed their medications on DrugStars so you can hear what they think directly from the patients themselves on their forum below.

Filter News

Filter by Date
Category
Reset

“Happy Easter”

A message from Karen, our Charity Director, wishing you a very Happy Easter!

Read More

Lisa helps Shine a Light on Neurofibromatosis in Belfast

Lisa has NF1, & lobbied the Belfast Lord Mayor to get Belfast City Hall lit up blue on Neurofibromatosis Day, 17th May

Read More

Alex’s NF1 story

Alex describes her life with NF1, growing up in care, doing adaptive boxing & gym classes & getting NCFE Care qualifications

Read More

Sumeeth’s Schwannoma story

Sumeeth, thought nothing of a muscle twitch after a hangover - it was the first symptom that led to a Schwannoma diagnosis

Read More

Laura’s NF1 story

Laura is doing a skydive fundraiser to raise awareness & funds for NTUK, after her daughter was diagnosed with NF1

Read More

Kian’s NF2 Blog

Kian shares his NF2 journey and his inspirational path - training to swim in the para-olympics

Read More

Disfigurement equality at work - research

This research study by Queen Mary University, London, aims to improve workplace equality for people with disfigurements

Read More

RAISING THE ROOF: CHARITY COMEDY NIGHT IN AID OF NERVE TUMOURS UK

Join us in London on our first comedy night to celebrate 40 years of Nerve Tumours UK

Read More

NF1 stem cell research study

Julieta is carrying out stem cell research to understand brain development in those with NF1

Read More