Dayna’s Story
12 August 2019
Dayna's Story
Shortly after I was born it was noticed that my eye kept bulging out after every nap I took. This led to a number of tests being carried out on myself which lead to my diagnosis of Neurofibromatosis Type 1, and also the identification of a brain tumour on my optic nerve. I was then treated with chemotherapy, in which I had to have a port fitted for the treatment.
Sadly, this reduced vision in my left eye and made me go blind in my right when I was only 2.
At 6 years old a tumour was found on my ankle and I had to have “neurofibromatosis specialist surgery”.
Then at 12 I was diagnosed with a brain tumour on the temporal lobe, which led to emergency surgery being needed, this severely affected my memory for a long time.
At the age of 17 I was then diagnosed with a tumour in my back which is currently being monitored by my specialists alongside the tumour that was found on my vagus nerve.
A further two complications from my NF1 is that I have developed both breathing and digestive problems as well.
I'm 20 and have had Neurofibromatosis type 1 since I was 2.
– Dayna"However, despite all this I still maintain all my ambitions and dreams, which I know I can achieve. One of these dreams is to help as many people with Neurofibromatosis as possible, and to possibly help with any further tests and research in the future. "
Filter News
Breast Cancer in Neurofibromatosis Type 1
Professor Gareth Evans takes us through a summary of the current research around the links between NF1 and breast cancer
Read MoreBromley NF1 Info Day 2024
Join us for an insightful NF1 Information Day in Bromley on November 23, 2024. Expert talks, Q&A, and community connection.
Read MoreJoanna’s Story
Joanna updates us on her breast cancer diagnosis, and how she's going above and beyond in her fundraising and fitness.
Read MoreAndrea’s Story
Andrea shares her long journey for an NF diagnosis and why she wants her story out there.
Read MoreAdvice for Students with NF1, NF2-Schwannomatosis, and Schwannomotosis
Expert advice, information and resources to help you get the most from university.
Read MoreElla’s Story
Ella shares her insights into campus life with NF, her victories and hurdles and the importance of self belief.
Read MoreGeorgia’s Story
Georgia shares her her story of self celebration, the importance of difference and how perseverance is key.
Read MoreNottingham INFormation Day a Big Thank You
Photos, feedback and more from the Nerve Tumours UK INFormation day in Nottingham.
Read More