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Dalvinder’s 100km Ultra Challenge for NF

13 September 2021

Dalvinder started long distance walking in 2017, when her friend Katja asked her to join her for the Walk With Me 26 mile walk.  Starting with short training walks, they built up their distance over time, to the 26-miler, which proved to be the start of many long walks to come.  Walking with a friend is good fun, a great opportunity to put the world to rights,and share the experience. Later that year, they completed a 50km walk together.

Then in 2018, they decided to undertake the 100km Ultra Challenge Thames Path walk in 24 hours, Dalvinder raising funds for the Neuro Foundation (as it was then).

Her father Gurdial has had the benign tumours all his life, but NF2 was only diagnosed within the last 12 years and the information the charity provide has been incredibly helpful.

"Information is liberating and so it has been a huge relief to find out what this condition is and how it may develop. I have two other family members with NF2 and it is reassuring to know that help is out there if we need it. Hence, I’m really happy to do my bit to support the charity and its work by walking crazy distances."

–

With challenge events now able to continue again, Dalvinder took part in her 3rd 100km Ultra Challenge walk along the Thames Path on 11th September, setting a time of 19 hours 33 minutes, beating her previous personal best of 22hrs 30 mins. She is hoping to raise £1000 for Nerve Tumours UK. 

Support Dalvinder's efforts

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Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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58:51
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Masterclasses in NF: Optimising Hearing Outcomes in NF2-Related Schwannomatosis - Simon Freeman

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Masterclasses in NF: NF1 Dermatological Manifestations - Pierre Wolkenstein, Laura Fertitta & Sirkku Peltonen

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Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

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Masterclasses in NF: Breast Cancer in NF1 - Gareth Evans

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Masterclasses in NF: Pain in Non-NF2-Related Schwannomatosis - David Pang

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Masterclasses in NF: Distinguishing Non-NF2-Related from NF2-Related Schwannomatosis - Clinical and Genetic Approaches - Said Farschtschi

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Masterclasses in NF: NF1 Pre-Implantation Genetic Diagnosis - Eric Legius & Prof. Ellen Denayer

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NF2 Working Together: from a tentative diagnosis and beyond

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NF1 Working Together Part 2: from a tentative diagnosis and beyond

Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

0 seconds of 8 minutes, 6 secondsVolume 90%
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Masterclasses in NF: Surgery in NF2 - Michel Kalamarides & Andrew King

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Masterclasses in NF: Cognition and Behaviour in NF1: Phenotype and Treatment Approaches - Shruti Garg, Andre Rietman

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0 seconds of 1 hour, 2 minutes, 3 secondsVolume 90%
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Masterclasses in NF: Emotional Challenges in NF1, NF2 and Schwannomatosis - Susie Henley, Thomas Pletschko & Verena Rosenmayr

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Masterclasses in NF: NF1 Pediatric Management - Rianne Oostenbrink

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1:08:58
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Masterclasses in NF: NF1 Orthopedic Manifestations - Eric Legius and Christophe Glorion

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Masterclasses in NF - Neurofibromatosis Type 1: Cutaneous Neurofibromas - Pierre Wolkenstein and Sirkku Peltonen

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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BPNA Keynote Lecture - Prof Rosalie Ferner - Neurofibromatosis 1 in the 21st Century

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