Childhood Neurological Conditions Survey
30 September 2020
The British Paediatric Neurology Association and James Lind Alliance have launched a survey to define the Top 10 unanswered questions about the treatment of childhood neurological conditions, where there is uncertainty about the effectiveness of treatments.
Children and young adults (aged 0-25) with neurological conditions are invited to suggest your questions about treatments, therapies or procedures aimed at improving your health and wellbeing. Help shape the future of research into Childhood Neurological Conditions by sharing your experiences. Anyone affected by Neurofibromatosis is welcome to take part; patients, families, friends and carers.
It’s important our community shares its voice to ensure that the surveys and workshops carried out by, The British Paediatric Neurology Association and James Lind Alliance, are representing those whose lives are affected by NF.
The eventual aim is to turn these priorities into funded research questions that have the potential to go on to improve the lives of children with Neurofibromatosis and other neurological conditions.
If you are interested in taking part in this survey click the button below:
Nerve Tumours UK is not responsible for any data collection or content of the research.
Filter News

World At Her Feet
Christina has wrtiten a blog partly about living with NF1 and partly about her travels. Find it here:
Read More
Arooj: The Fashion Blogger with NF
Arooj Aftab, 22, is an influencer, with NF1, who is known for her baggy fashion style
Read More
Nerve Tumours UK wins Movement for Good award
Find out more about the award and why we received it here:
Read More
Dayna’s Story
Despite suffering many set backs as a result of NF, Dayna still maintains all her ambitions in life. Read her story here:
Read More
Prudential Ride 2019
Thank you so much to all our Prudential Ride 2019 riders! Find out more, including some fantastic photos, here:
Read More
Expertise in Neurofibromatosis: Within Europe
Find out more about the spread of NF experts across Europe:
Read More
New Gene Therapy at a World-Renowned Research Insitute
Find out more about the new gener therapy that both NTUK and NF2 Biosolutions are strongly supporting
Read More
Deacons Marina’s fun filled fundraiser for NTUK
Find out more about the successful and well received fundraising event here:
Read More