Childhood Neurological Conditions Survey
30 September 2020
The British Paediatric Neurology Association and James Lind Alliance have launched a survey to define the Top 10 unanswered questions about the treatment of childhood neurological conditions, where there is uncertainty about the effectiveness of treatments.
Children and young adults (aged 0-25) with neurological conditions are invited to suggest your questions about treatments, therapies or procedures aimed at improving your health and wellbeing. Help shape the future of research into Childhood Neurological Conditions by sharing your experiences. Anyone affected by Neurofibromatosis is welcome to take part; patients, families, friends and carers.
It’s important our community shares its voice to ensure that the surveys and workshops carried out by, The British Paediatric Neurology Association and James Lind Alliance, are representing those whose lives are affected by NF.
The eventual aim is to turn these priorities into funded research questions that have the potential to go on to improve the lives of children with Neurofibromatosis and other neurological conditions.
If you are interested in taking part in this survey click the button below:
Nerve Tumours UK is not responsible for any data collection or content of the research.
Filter News

Eva’s Races
Eva has run 3 races over the past year for NTUK, find out what has been motivating her here:
Read More
Carl’s Story in memory of his sister who had NF2
Carl recently hosted his own wrestling event in memory of his late sister, find out more on his story here:
Read More
NTUK Dolphins at the Swim Serpentine 2019
Find out more about the incredible day for all involved at Hyde Park here:
Read More
Rotary’s Summer Evening Jazz Concert in aid of NTUK
Find out more about the amazing Jazz Concert that was hosted in aid of NTUK here:
Read More
K-Star Wrestling in aid of NTUK
Find out more about the successful wrestling event that took place in aid of NTUK
Read More
2019 NF Conference
Find out more about the 2019 NF Conference being hosted by our friends across the pond the CTF
Read More
Kate Swallow’s Fantastic Fundraiser at the Tipsy Pig
Find out more about the succesful and throughly enjoyed charity music event hosted by Kate Swallow at the Tipsy Pig
Read More
Support Specialist: One of Many Cases
Have a read about a specific case study detailing the kind of work our support specialists offer to those with NF
Read More
Thank You James Gamble!
James Gamble just completed an incredible fundraiser in which he has cycled a total of 980 miles for NTUK! Find out more here
Read More