Billy & Logan’s Story
02 July 2020
This is me Billy and my son Logan.
![](/images/common/Billy-Logan-NF1-Story-NTUK-1024x768.png)
We both have NF1 but we don't let it stop us!
Logan is a squad member for the England Karate squad, as well as being a member of the kickboxing & Brazilian Jiu-Jitsu squads. He is also an avid runner. Logan only suffers midly with NF1 but does have mild hypermobility associated with it.
I myself was diagnosed with NF1 at 7 years old. I have undergone many surgeries, around 15-20 surgeries in total of the head, neck and left ear area to remove plexiform fibromas and associated problems that go with them. I try not to let it stop me too much and last year I was able to run both Brighton and London marathons in the space of 2 weeks.
The hardest part was the fundraising for sure!
Filter News
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World NF 2 Day May 22nd 2020
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Statement by Mary Thomas Clinical Neurofibromatosis Nurse UK
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Shine a Light 2020 Success!
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Sarah’s Story as told by her Father Clemence
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Statement by Helen Tomkins our Specialist Neurofibromatosis Nurse UK
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No Laughing Matter
Tom is a former journalist, here he describes his journey from music journalism to comedy, & what his NF2 has to do with it
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Shine A Light on Neurofibromatosis 2020
Find out what we're up to for our Shine A Light campaign this year!
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