Alex’s 12 months of Running
22 July 2021
Alex has completed his epic 12 months of running, racing in 8 out of the 10 planned events as 2 had unfortunately been cancelled. Helping to shine a light for NF across the country by running a truly impressive total distance of over 80km, he successfully completed the races below:
- Chester Marathon October 3rd, 2021 (3hr 57min 29 sec)
- Aintree 10km July 21st, 2019 (43.05) finished 31st.
- Wigan 10km September 1st, 2019 (43.33) finished 167th
- Southport 10km September 22nd, 2019 (42.37) finished 91st
- Rainford 10km October 6th 2019 (43.42) finished 29th
- Beat the reaper 10km October 20th 2019 (40.50) finished 8th
- Mad Dog 10km February 9th, 2020, cancelled due to storm Ciara.
- Chester 10k March 8th, 2020 (40.17) finished 101st (4562)
- Chester half marathon September 19th 2021
- Southport half marathon June 28th, 2020, finished 139th (1088)
- Chester 10k July 18th finished 150th (2233)
Alex took on this challenge to help support the wider NF community as both himself and his daughter Bella have NF1.
Alex took on this challenge to help support the wider NF community as both himself and his daughter Bella have NF1.






–"I was diagnosed with NF1 at an early age in what was a challenging time for myself and my parents. As I have got older, I've had several operations to remove lumps from my arm and knee. "
In December I welcomed my beautiful daughter with my wife Sarah. I had a feeling from day one that she had the NF gene due to the presence of her birthmarks, this was later confirmed after a number of blood tests.

Alex has always been fond of running, finding it a great way to get fit and stay motivated and the perfect way to help raise funds to support Nerve Tumours UK.
I want to do these runs to help raise awareness for NF and to further support the work Nerve Tumours UK do, therefore ensuring a bright future for my daughter and everyone else who has NF.

Filter News

The New National Helpline
The National Helpline is expanding to Monday, Wednesday and Friday, from early October
Read More
London Marathon 2022
Congratulations to our 2022 London Marathon runners - thank you from the NTUK team
Read More
Hannah’s NF1 story
9 year old Hannah is running the Junior Great North Run, so other children with NF can also have access to doctors & nurses
Read More
Sam’s Marathon
Sam, our Specialist NF Nurse for Merseyside & the North West, is running the London Marathon - her very first Marathon!
Read More
NF Patients Community Day
The NF Patients Community Day is on Sunday 9th October 2022 - register to attend virtually
Read More
Appearance, Identity & Law workshop
Appearance, identity & law workshop at Queen Mary University London School of Law
Read More
Alfred the Pirate
Seven year old Alfred the Pirate takes NF1 in his stride, and is supported by Specialist NF Nurse Mel
Read More
Nicole’s NF1 story & skydive
Nicole shares her NF1 journey and her motivation to inspire children with disabilities to achieve whatever they want to do
Read More