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Welcome to our Nerve Centre
Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community.
NF is the new medical name for a set of genetic conditions that cause tumours to grow on nerve endings: Neurofibromatosis Type 1, NF2-related-Schwannomatosis, and Schwannomatosis. We at Nerve Tumours UK are in the process of updating our medical publications and resources in print and digital to reflect the new names where relevant. This will however not be reflected in our news section and other non-medical publications digital and print.
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The Royal Society - A Quest for the perfect Human…? A debate on the implications of human genome editing
Find out more about the debate recently undertaken at The Royal Society here:
Read MoreAppearance Matters: Prof Diana Harcourt and Maia Thornton
Find out both Diana's and Maia's views on their work and the importance of their work for people with NF:
Read MoreJane Frances
Here Jane Frances tells us how findings from psychological research can help parents and teachers of children with NF
Read MoreSarah’s Story
Sarah has NF1 and works full time for the NHS check out her intriguing story here
Read MoreLaura’s Story
Read about Laura's experience of undergoing surgery to remove a tumour from her spine here:
Read MoreVisible Difference Equality Law Research: summary of findings
Find out more about the results here:
Read MoreThe Galloway Family and their “amazing” four year old Ruby
Have a read about the incredibly brave young Ruby Galloway (NF1) and check out their previous and future fundraiers.
Read More“Framing the face: History, Emotion, Transplantation” a blog from James Partridge
Find out more about the blog and what is concerns here:
Read MoreA Spooktacular Halloween day for NTUK
Find out more about the wonderful fundraising event here:
Read MoreWe are funded 100% by voluntary donations
So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.
See how you can get involved