Latest News
and Events
Welcome to our Nerve Centre
Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community.
NF is the new medical name for a set of genetic conditions that cause tumours to grow on nerve endings: Neurofibromatosis Type 1, NF2-related-Schwannomatosis, and Schwannomatosis. We at Nerve Tumours UK are in the process of updating our medical publications and resources in print and digital to reflect the new names where relevant. This will however not be reflected in our news section and other non-medical publications digital and print.
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Becky’s Story
From dealing with her family's NF1 to improving her fitness and running marathons, have a read of Becky's amazing story here:
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“Charity Shave Off” for NF in Northern Ireland
Janice and her family recently held a charity shave off in Northern Ireland. Find out more about the event here:
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Blackpool Magic Convention 2020
Find out more about the convention in aid of NTUK and how you can get involved here:
Read More![](https://nervetumours.org.uk/images/made/images/common/2019-reviewPage-Preview-800-x-500-px_800_600_s_c1.png)
Reflections on 2019
Check out our reflection on what we feel was an incredibly succesful 2019 for the charity:
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Helen’s Story as told by her Mum Pauline
Due to her NF1, Helen has faced several struggles. Mum Pauline has openly shared her daughter's experiences with us here:
Read More![](https://nervetumours.org.uk/images/made/images/common/NicolaPage-Preview-800-x-500-px_800_600_s_c1.png)
Nicola’s NF2 Journey
Nicola creates her own YouTube videos to help promote NF2 awareness. Find out more about her NF2 journey here:
Read More![](https://nervetumours.org.uk/images/made/images/common/James-partidge-article-novemberPage-Preview-800-x-500-px_800_600_s_c1.png)
Making the Future of Work inclusive of persons with disability
Check out James' recent presentation at a conference in Geneva highlighting issues of "face equality" in the workplace
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