2nd Lockdown Announcement
05 November 2020
Dear Friends,
Well, here we go again! As we enter our second national lockdown, our team here at NTUK will continue to work as hard as we possibly can to help our NF community across the UK to weather the storms we may now face. While the pandemic and the lockdown affects all of us, it is extremely important to remember, and acknowledge, that we are not all in the same boat, and each member of our community may face their very own unique problems. The team is here to help you in any way we can, so please do not hesitate to contact us.
We can help in so many ways. First and foremost, our regional nurses are still here and carrying out their duties; there are sections on our website that cover medical issues, carers' information, issues around employment, school information, etc; and our national helpline will be operational as usual on Monday and Wednesday each week.
Please do continue to follow the government guidelines during this period. It is only if we all pull together, respect each other and behave as we should, that we will get the better of this dreadful virus. As we often say, we are stronger together!
With my warmest wishes,
Karen
For further information visit our help section

Filter News

Joy’s NF1 story
Joy describes living with NF1; her son's diagnosis and support at school; fundraising and shining a light on NF
Read More
A man on a mission: Onno Faber and his NF2 journey
Onno Faber - since NF2 diagnosis aged 33, Onno is a man on a mission. Article courtesy of NEO.LIFE
Read More
Kate’s NF1 Story & DanceAthon
Kate describes her son's NF1 journey and how NTUK supported them
Read More
Strictly Come Running: London Marathon Class of 2021
Congratulations to our class of 2021 London Marathon runners
Read More
Nerve Tumours UK Specialist Neurofibromatosis Nurses attend the 2021 NHS England NF2 meeting
Read more about the England NF2 meeting - working together to improve the experience of NF2 patients
Read More
Douglas Thomson’s NF1 Story
Douglas describes life with NF1 and how losing his leg was one of the best things to happen to him
Read More
Tricia’s Wingwalk and Birthday Fundraiser for Sarah and Keith
Tricia's fundraising wingwalk in memory of her daughter Sarah who had NF1, and to remember her father Keith
Read More
Student Voice Prize 2021
The 2021 Student Voice Prize opens on 6th October! #DareToThinkRare for the 8th annual essay competition!
Read More