Shine A Light on NF! We work with organisations worldwide to light up landmarks and buildings blue for May 17 World NF Awareness Day.
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Shine A Light on NF
Nerve Tumours UK, the leading voice and support network for people living with NF in the United Kingdom, needs your support.
Help us Shine A Light on World NF Day in 2026, as we highlight and campaign for access to the medical and non-medical care that is needed by those living with NF.
NF is the medical group name for Neurofibromatosis Type 1 (NF1), NF2-related-Schwannomatosis (NF2) and Schwannomatosis (SWN), one of the most common neuro-genetic conditions that causes tumours to grow on nerve endings, and which has a multitude of associated conditions. .
In association with the Children’s Tumor Foundation USA, we are excited to announce the return of the “Shine A Light on NF” campaign to raise awareness for NF by lighting up landmarks and buildings on World NF Awareness Day - 17 May.
We want to raise awareness to help those living with NF, so they receive the correct support, and to campaign for funding for better services. Local and international landmarks participating, leads to the NF Community feeling seen, heard and supported.
World NF Awareness Day is on Sunday 17 May 2026
We are asking iconic landmarks, buildings & homes to light up blue for NF patients and their families. We provide Social Media Toolkits to all willing organisations to showcase why they are lighting up, along with case studies, donation links and many other ways to support patients with NF on the upcoming awareness day.
Join us in 2026 on World NF Awareness Day, 17 May and World NF2 Awareness Day, 22 May.
A special relationship
This will mark the tenth year that Nerve Tumours UK have joined the campaign, reinforcing our continued partnership with Children's Tumor Foundation in the United States. We are very pleased to be part of this excellent, global initiative.
– Alison Lobo, Community Fundraising & Campaigns Coordinator at Nerve Tumours UK"We were very happy to have been joined by over 400 landmarks lighting up worldwide last year, including USA, Canada, Australia, China, Italy, Thailand & Singapore, and we want to do even better this year. 176 of those were in the UK & Republic of Ireland, so let's keep upping our game to support our NF Community."
Take Part! Join the NF Community
Take a look at some of the buildings and landmarks signed up for 2025.
Find out how you can help our campaign here
Check out the map showing all our light ups
Use along with the download list above
Shine A Light on NF 2025 light ups
– Elizabeth, Jarrold, Norwich"The amount of people who asked us what it was for and had to admit this was a health condition not heard of before was surprising, but it certainly got the message to a lot of people and I hope the same can be said in other areas of the country too."
We need your help
Support Our CampaignShine A Light on NF: Raise awareness of NF by lighting up landmarks and buildings on World NF Awareness Day - 17 May.
26,500 people ijn the UK are diagnosed with NF. Help us make sure that they receive the care they need to live their lives.
We are very grateful for all support, donations can be made on the following link. https://www.justgiving.com/campaign/shine-a-light-on-nf
Copy the above paragraph including the link and post this to your social media; send it to your MP; local press or anyone you can think of that will support our campaign.
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