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Cameron Vear's fundraising page
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Hello my name is Cameron!
I am the proud uncle of Roo Arlo Barker
At 17 months old he began showing multiple signs of NF, and after undergoing several MRI scans and tests, it was confirmed that he had the condition Neurofibromatosis 1 (NF1). Since being diagnosed in 2019 he has developed more symptoms, one being early signs of Speech and learning difficulties, as well as autism. For a child of his age his speech is very limited and he can only say a couple of different words.
His favourite thing in the whole world is TOY STORY, however more specifically BUZZ LIGHTYEAR, resulting in his favourite word to say being ‘BUZZ’.
To raise awareness of the condition, from the 14th June - 20th June I will be travelling the distance of exactly 103 Miles (Distance from Leicester to London) to raise money for the charity Nerve Tumours UK. I will be splitting the distance equally between 3 physical activities; Running, Cycling and Rowing, with the final mile being a walk with Roo himself. All of this will be done at my local leisure centre. As I’m doing it in honour of Roo, I will be doing the whole thing dressed as BUZZ LIGHTYEAR!
I want him to grow up believing that he can do anything that he puts his mind to, and just like his hero Buzz always says.. “To infinity and beyond”
I would love for people to donate as much as they can as it is such an important cause for myself and my family, and we must help fund smaller charities that aid those suffering from the disorder, and their families who are equally as affected.
THANK YOU!
Created by: Cameron Vear on 17/05/2021
Margaret & Jim
27/05/2021
Amazing!
£20.00
Jean
27/05/2021
Xx
£20.00
Judith
27/05/2021
Well done, Cameron
£20.00
25/05/2021
No message provided
£30.00
Maisie Moo
25/05/2021
Well done, Cameron. What a lovely thing your doing. Love from Maisie Read and family xx
£20.00
Sam Bell
24/05/2021
Proud of you Buzz 🥰 Well done on trying to raise both money & awareness for such a worthy cause
£10.00
Dan
24/05/2021
Amazing Cameron 👏🏼
£5.00
Registered Charity Number: 1078790 and SC045051
Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.
Website by Optima.
Ophthalmologic Findings & Orthopic Eye Examination in NF1 and NF2-Related Schwannomatosis
Prof. Dr. Berthold Pemp
OT Sabine Koinig
Plexiform Neurofibromas in NF1 - General Course and Neuroradiology
Assoc. Prof. Dr. Gregor Kasprian
Dr. Hector Salvador, MD
Treatment Strategies for Vestibular Schwannomas: When to Treat? How to Treat?
Michel Kalamarides MD
Masterclasses in NF1: 1.Management Of Plexiform Neurofibromatosis in NF1
Rianne Oosterbrink MD
Justus L Groen MD
Karine Lascelles MD
Constitutional Mismatch Repair Deficiency Syndrome as Differential Diagnosis to NF1/Legius Syndrome
Prof. Dr. Katharina Wimmer, Medical University of Innsbruck
Masterclasses in NF: Rare NF1-Associated Tumors in Adults
Eric Legius, MD, PhD, University Hospital Leuven
Prof. Ellen Denayer, University Hospital Leuven
Masterclasses in NF: Optimising Hearing Outcomes in NF2-Related Schwannomatosis
Simon Freeman, MPhil FRCS, Manchester Royal Infirmary and Salford Royal Hospital
Masterclasses in NF: NF1 Dermatological Manifestations
Pierre Wolkenstein, MD, PhD, Hopital Henri-Mondor, Paris, France
Laura Fertitta, MD, Hôpital Universitaire Henri Mondor
Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden
Masterclasses in NF: Breast Cancer in NF1
Gareth Evans, MD, University of Manchester, UK
Masterclasses in NF: Pain in Non-NF2-Related Schwannomatosis
David Pang, MD, ChB. Guys and St Thomas' Hospital NHS Trust, London
Masterclasses in NF: Distinguishing Non-NF2-Related from NF2-Related Schwannomatosis - Clinical and Genetic Approaches
Said Farschtschi, MD, University Medical Center, Hamburg-Eppendorf, Germany
Masterclasses in NF: NF1 Pre-Implantation Genetic Diagnosis
Eric Legius, MD, PHD, University Hospital of Leuven, Belgium
Prof. Ellen Denayer, University Hospital of Leuven, Belgium
Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.
Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.
Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.
Masterclasses in NF: Surgery in NF2
Michel Kalamarides, MD, PhD, Hôpital Pitié-Salpêtrière, Paris, France
Prof Andrew King, MBBS FRCS FRCS(SN), Salford Royal Hospital, Manchester, United Kingdom. Member of the MAB of Nerve Tumours UK
Masterclasses in NF: Cognition and Behaviour in NF1: Phenotype and Treatment Approaches
Dr Shruti Garg, MBBS, MRCPsych, MMedSci, PhD, Royal Manchester Children’s Hospital, United Kingdom. Member of the MAB of Nerve Tumours UK
Andre Rietman, PhD, Erasmus University Medical Center, Rotterdam, Netherlands
Masterclasses in NF: Emotional Challenges in NF1, NF2 and Schwannomatosis
Susie Henley, DClinPsy, PhD, Guy’s and St Thomas’ NHS Foundation Trust, London UK
Thomas Pletschko, PhD, Medical University of Vienna, Austria
Verena Rosenmayr, Clinical Psychologist, Medical University of Vienna, Austria
Masterclasses in NF: NF1 Pediatric Management
Rianne Oostenbrink, MD, PhD, Erasmus University Medical Center, Rotterdam, Netherlands
Masterclasses in NF: Associated Glioma in Children - the Optic Pathway and Beyond
Amedeo Azizi, MD, PhD, Head of the Paediatric Neurofibromatosis Program and Paediatric Neuro-Oncology Program, Medical University of Vienna, Austria
Masterclasses in NF: NF1 Orthopedic Manifestations
Eric Legius, MD, PhD. Head of Clinical Genetics Department of the University Hospital Leuven, Belgium
Christophe Glorion, MD, PhD, Department of Paediatric Orthopedic and Traumatologic Surgery, Hopital Necker-Enfants Malades, Paris, France.
Masterclasses in NF: NF1 Malignant Peripheral Nerve Sheath Tumours
Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK
Viktor-Felix Mautner, MD, PhD. University Medical Centre in Hamburg-Eppendorf, Germany. Head of NF Outpatient Department
Masterclasses in NF - Neurofibromatosis Type 1: Cutaneous Neurofibromas
Pierre Wolkenstein, MD, PhD. Hopital Henri-Mondor, Paris, France. Head of the Department of Dermatology
Sirkku Peltonen MD, PhD. University of Gothenberg, Sweden. Professor of Dermatology
INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf
‘Neurofibromatosis 1 in the 21st Century’
Keynote Lecture at the 48th British Paediatric Neurology Association Annual Scientific Meeting on 21st January 2022
Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK
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