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Swimming for World NF1 Day

Swimming for World NF1 Day

Shine a Light - Swimming for World NF Day

Mel Murrell's fundraising page

17 May 2023

Swim

17-05-23 - Update:
I have completed the 17km that I was hoping to do during the month of May. So I have changed the goal post! I have now decided to swim 17 miles which is 1095 lengths of a 25m pool. I completed 680 today so ‘only’ another 415 to go. I have also raised my target to match the number of lengths.

NF is a genetic condition causing tumours to grow along your nerves with possible additional learning difficulties and skeletal abnormalities. It is a complex and life-long condition. Despite approximately 26,500 people in the UK currently diagnosed with NF there is still little awareness and funding for the condition. Nerve Tumours UK provides crucial medical and non-medical support to help those living with Neurofibromatosis live as fulfilling life as possible.

You may or may not known this, but I am one of the two Specialist Advisors for Nerve Tumours UK in the West Midlands.

I last did a fundraise 3 years ago during Covid, when my daughter (who was 18 at the time) and I shaved our heads for Nerve Tumours UK. We raised an amazing £1605.50 thanks to everyone’s support.

So - I have decided this time to do a swim for Nerve Tumours UK as this is not something I have done before. I have decided to swim 17km during the month of May as this is when World NF1 day falls - 17th May. It is also Chromosome 17 that is affected so it seemed a good number to me. Maybe next time I can do it for World NF2 and Schwannomatosis day on 22nd May…

So - 17km works out to be 680 lengths of the 25 metre pool that I swim in. I need to swim four times a week, doing 40 lengths each time, which coincidently is 17 days of swimming. Hence my target is £680.

I know that times are hard at the moment - but if you can spare any pennies or pounds, it really does help - I see that every day that I work with people with NF. So, thank you - I really do appreciate your support.

Mel x

Created by: Mel Murrell on 12/04/2023

£1,059.50

Goal: £1,095.00

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60 Donations

Aunty Audrey

29/05/2023

Well done Melanie x

£10.00

Simon

28/05/2023

Well done, Mel.

£20.00

Uncle Peter and Auntie Sandra

27/05/2023

Well done, Mel.

£50.00

Betty

25/05/2023

Well done, Mel. Blown away by your achievement 

£10.00

Bob & Penny

21/05/2023

Well done, Mel.

£10.00

Lot and Mart

18/05/2023

Well done, Mel. 

£20.00

Denise Williams

18/05/2023

Well done, Mel.

£5.00

Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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