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End NF

End NF

Lola - Our NF Warrior

Samantha Kennedy's fundraising page

12 September 2021

Swim

Our gorgeous daughter Lola was diagnosed with NF1 in 2015 and we’ve been on a learning curve ever since. NF1 affects children and adults in many different ways and what we have learnt to accept is that there is no written rule with this one! For Lola this heavily impacts her learning and speech and has recently been diagnosed with ADHD. Her sight is also impacted and she has had several MRI’s to ensure there are no nasty tumours lurking behind her eyes!!!!

No matter what she faces she ALWAYS has a smile on her face and truly embraces life.

We have raised around £25,000 over the past few years and I’m hoping we can really smash it in 2020/2021!!!!

I completed the GNR Solo in 2020 and I will be running Through Great North Run in 2021 with my brother Andrew and my sister in law Helen, hoping to smash our £5,000 target!!!!
#endnf 💙💚💙

Created by: Samantha Kennedy on 22/10/2019

£10,923.60

Goal: £5,000.00

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£11,728.52

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259 Donations

A Sue and U John

12/09/2021

So proud of you Helen for completing the Great North Run you have really worked hard to achieve this what an accomplishment .

£20.00

Ryan C

12/09/2021

Well done, Steve! Great effort!!

£15.00

The Vernons

12/09/2021

Good luck Helen, it’s only half a marathon you’ll be fine 😂😂😂

£25.00

Max

11/09/2021

Good luck Steve 👍

£20.00

Jess Smith

11/09/2021

The team will do you and Lola proud 😘

£10.00

11/09/2021

No message provided

£13.10

08/09/2021

No message provided

£5.00

Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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