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Raising awareness of NF1 with Martha!

Patricia Grimes's fundraising page

20 May 2024

Other

Martha was diagnosed with NF1 at 5 1/2 years old. Up until this point we had never heard of Neurofibromatosis (NF) and it took us a long time to be able to say it! Since that diagnosis we have learnt much about this genetic condition but we’re always surprised at how little people know about the condition, including medical professionals. This condition is extremely variable with some people going their whole lives not knowing they have it and others having their lives hugely affected in a life-limiting way with multiple operations and co-factors affecting their everyday lives. Two thirds of people with NF also have a learning disability.

26,000 people in the UK have NF making it one of the most common genetic conditions in the country. Half of those have inherited the gene from a parent and the other half have developed the condition as a spontaneous mutation in the womb.

Martha is holding a fundraiser at her Primary School on 20th May selling cakes, biscuits and homemade bracelets and badges to raise awareness in her local community.

Thank you for visiting this page and donating towards Martha’s fundraiser. All money goes towards the support of people and families affected by NF.

Created by: Patricia Grimes on 08/05/2024

£1,395.80

Goal: £100.00

Offline Donations

£0.00

With Gift Aid

£1,548.30

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31 Donations

South Marston school fundraiser

29/07/2024

From all those who attended the fundraiser on the 20th May!

£100.00

Jen Lequin

21/06/2024

Well done, Patricia.

£46.80

Mark

05/06/2024

That’s a lot of bracelets!

£20.00

Rhys

20/05/2024

Well done, Martha

£5.00

Rhys

20/05/2024

Well done!

£5.00

Grandma & Pops

20/05/2024

Well done Martha for raising awareness. You are a superstar!

£250.00

Joey

20/05/2024

Thank you for our cakes and badges!

£4.00

Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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