Gorgeous Lily
Ellie Horstmann's fundraising page
24 May 2026
Run
Lily my cousins daughter was diagnosed with neurofibromatosis (NF1) at just 22 months old. This rare genetic condition allows tumours to grow on the ends of nerve endings. This condition is so complex, extremely rare and unfortunately not very well known.
Lily has undergone countless medical exams and brain surgery to try remove some of the tumour behind her eye. The battle will be life long for her but she is an absolute super hero and bounces back after every hospital visit as if it is nothing.
My goal for this fundraiser is to raise the much needed awareness that this condition and charity so desperately needs. Nerve Tumours UK provides crucial support, information as well as campaigns and raising awareness for all those affected by neurofibromatoses- the conditions that cause nerve tumours.
Kayleigh, Lily’s mum has been a complete super woman and continues to run, fundraise and fight for her daughter. I am standing with her and honouring them both as I run this half marathon. Any donations at all would be greatly appreciated for such an amazing and close to home cause.
Thank you so much,
Ellie
Boyfy
06/10/2025
Proud of you darlin go smash that half marathon! X
£20.00
Kayleigh Blackburn
06/10/2025
Thank you so much for doing this for Lily and all those affected by NF1. It means the world to our family 🫶🏻
£50.00
erin b
06/10/2025
good luck ellie❤️
£10.00
06/10/2025
No message provided
£20.00
Jack
06/10/2025
Well done, Ellie. Hero
£10.00
Amy Rose
06/10/2025
Sending you love for your half marathon ells! So proud of you. Lily is beautiful and so strong 🩷
£20.00
06/10/2025
No message provided
£30.00