Charlotte Dowson 's fundraising page
13 July 2024
Other
Our 4yr old daughter Evie was diagnosed with Optic Pathway Gliomas on both eyes last year and subsequently received a diagnosis of Neurofibromatosis type 1.
Unfortunately this has made her permanently blind in her right eye and is undergoing chemotherapy treatment to save the sight in her other eye and will be able to “ring the bell” in June 2025.
Having never heard of NF1 we carried out lots of research and found that it is very rare and no cure.
Evie continues to amaze us and makes us proud every day.
Myself and my wonderful friends Anna, Dani, Jo, Lynette and Angie are hoping to raise awareness of this disease and to raise money for Nerve Tumours Uk.
Any donation would be very welcome!
Thank you!
Chris (Dani’s mum)
13/03/2024
Good luck to you all x
£20.00
Sarah
13/03/2024
Well done, good luck x
£10.00
Tammy
12/03/2024
Thinking of you all, hope this little helps.
£10.00
11/03/2024
No message provided
£5.00
Kirsty Pole
09/03/2024
Well done all of you for raising awareness. Sending my love x
£10.00
Tinks
09/03/2024
Hope you raise loads!
£20.00
Sally Burnett
08/03/2024
Well done, charlotte
£10.00