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Toby is fundraising in memory of Tristan Gray
Run
Me and my half-brothers, Alex and James, will be staying up for 24 hours straight, running a mile every hour (and a little extra to get us to the 26.2 miles)
This event is to commemorate 10 years since I lost my half-brother, Tristan Gray, who battled Neurofibromatosis 2. NF 2 causes tumours to grow on nerve endings throughout the body, most notably, and dangerously, on the brain and spine. Often the removal of these tumours can result in facial palsy and total hearing loss.
Currently there is no cure for Neurofibromatosis so it is important that charities like Nerve Tumours UK receive donations so they can carry on providing fantastic support, as no one with Neurofibromatosis should have to go through it alone.
Every donation, no matter how small, will make a difference to someone out there.
When: 5th March 2021 starting at 10am until 10am on the 6th
How will it work: The first two runs will be 2 miles then the other 22 runs will be 1 mile every hour
Created by: Toby Gray on 16/02/2021
Max
25/02/2021
Good luck guys, Tristan would be proud! It’s a great cause 👏🏼
£50.00
Dan
24/02/2021
Good luck chief. You’ll smash it! Such a hugely worthy cause!
£20.00
DAVE C
24/02/2021
Good luck
£20.00
Big Bruv Alex
24/02/2021
In loving memory of my little brother Trist .. a great lad !
£100.00
23/02/2021
No message provided
£40.00
Andy Russell
20/02/2021
Well done for organising Toby, I can see you staying up but I'm not sure about Alex and James, they are both getting on a bit! Best of luck. Andy
£100.00
Lauren
20/02/2021
Well done Toby!! 😊)
£10.00
Registered Charity Number: 1078790 and SC045051
Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.
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Prof. Dr. Katharina Wimmer, Medical University of Innsbruck
Masterclasses in NF: Rare NF1-Associated Tumors in Adults
Eric Legius, MD, PhD, University Hospital Leuven
Prof. Ellen Denayer, University Hospital Leuven
Masterclasses in NF: Optimising Hearing Outcomes in NF2-Related Schwannomatosis
Simon Freeman, MPhil FRCS, Manchester Royal Infirmary and Salford Royal Hospital
Masterclasses in NF: NF1 Dermatological Manifestations
Pierre Wolkenstein, MD, PhD, Hopital Henri-Mondor, Paris, France
Laura Fertitta, MD, Hôpital Universitaire Henri Mondor
Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden
Masterclasses in NF: Breast Cancer in NF1
Gareth Evans, MD, University of Manchester, UK
Masterclasses in NF: Pain in Non-NF2-Related Schwannomatosis
David Pang, MD, ChB. Guys and St Thomas' Hospital NHS Trust, London
Masterclasses in NF: Distinguishing Non-NF2-Related from NF2-Related Schwannomatosis - Clinical and Genetic Approaches
Said Farschtschi, MD, University Medical Center, Hamburg-Eppendorf, Germany
Masterclasses in NF: NF1 Pre-Implantation Genetic Diagnosis
Eric Legius, MD, PHD, University Hospital of Leuven, Belgium
Prof. Ellen Denayer, University Hospital of Leuven, Belgium
Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.
Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.
Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.
Masterclasses in NF: Surgery in NF2
Michel Kalamarides, MD, PhD, Hôpital Pitié-Salpêtrière, Paris, France
Prof Andrew King, MBBS FRCS FRCS(SN), Salford Royal Hospital, Manchester, United Kingdom. Member of the MAB of Nerve Tumours UK
Masterclasses in NF: Cognition and Behaviour in NF1: Phenotype and Treatment Approaches
Dr Shruti Garg, MBBS, MRCPsych, MMedSci, PhD, Royal Manchester Children’s Hospital, United Kingdom. Member of the MAB of Nerve Tumours UK
Andre Rietman, PhD, Erasmus University Medical Center, Rotterdam, Netherlands
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Susie Henley, DClinPsy, PhD, Guy’s and St Thomas’ NHS Foundation Trust, London UK
Thomas Pletschko, PhD, Medical University of Vienna, Austria
Verena Rosenmayr, Clinical Psychologist, Medical University of Vienna, Austria
Masterclasses in NF: NF1 Pediatric Management
Rianne Oostenbrink, MD, PhD, Erasmus University Medical Center, Rotterdam, Netherlands
Masterclasses in NF: Associated Glioma in Children - the Optic Pathway and Beyond
Amedeo Azizi, MD, PhD, Head of the Paediatric Neurofibromatosis Program and Paediatric Neuro-Oncology Program, Medical University of Vienna, Austria
Masterclasses in NF: NF1 Orthopedic Manifestations
Eric Legius, MD, PhD. Head of Clinical Genetics Department of the University Hospital Leuven, Belgium
Christophe Glorion, MD, PhD, Department of Paediatric Orthopedic and Traumatologic Surgery, Hopital Necker-Enfants Malades, Paris, France.
Masterclasses in NF: NF1 Malignant Peripheral Nerve Sheath Tumours
Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK
Viktor-Felix Mautner, MD, PhD. University Medical Centre in Hamburg-Eppendorf, Germany. Head of NF Outpatient Department
Masterclasses in NF - Neurofibromatosis Type 1: Cutaneous Neurofibromas
Pierre Wolkenstein, MD, PhD. Hopital Henri-Mondor, Paris, France. Head of the Department of Dermatology
Sirkku Peltonen MD, PhD. University of Gothenberg, Sweden. Professor of Dermatology
INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf
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Keynote Lecture at the 48th British Paediatric Neurology Association Annual Scientific Meeting on 21st January 2022
Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK
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