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10 mile for Lily

Claire Moore's fundraising page

20 July 2025

Other

We are a nursery team and we are doing a sponsored 10 mile walk for Lily who is 2 years of age she was diagnosed with NF1 (Neurofibromatosis Type 1) at the end of last year. NF is a genetic condition that causes tumours to grow on nerves anywhere in the body. Its effects vary greatly from person to person—some may experience only mild symptoms, while others face more complex challenges.

Some of the possible symptoms include:
🦒 Café-au-lait spots (milky brown birthmark-like patches)
✨ Tumour growth on nerves
👁 Vision problems (such as optic pathway gliomas)
🧠 Learning difficulties
🦴 Skeletal abnormalities

Lily faces several challenges with her NF1. Currently Lily has her leg in a splint (to protect her skeletal abnormalities) and her droopy eyelid (caused by a tumour behind her eye) to name just a few. But despite it all, she’s still her joyful, confident, and wonderfully feral 2-year-old self!

Sunday the 20th July 2025 we will take on this walk to support Lily and others who have the same condition as Lily.

The funds will all go to NF support

If you can, please take a moment to learn more about NF and how it affects children and families by visiting:

🔹 Nerve Tumours UK - https://nervetumours.org.uk
🔹 Childhood Tumour Trust - https://www.childhoodtumourtrust.org.uk

💙 Thank you for helping us raise awareness 💙

Created by: Claire Moore on 16/05/2025

£1,725.00

Goal: £150.00

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£0.00

With Gift Aid

£2,052.50

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86 Donations

Axar

20/07/2025

Best of luck to you all. 

£10.00

Fíadh and Finn Chandler

20/07/2025

Best of luck to Auntie Sarah and all the walkers today! Thinking of Lily and her family. X

£10.00

Angie

20/07/2025

Well done, Claire.

£10.00

Jess

19/07/2025

Let’s do this! 👏🏽

£20.00

Kayleigh

19/07/2025

To all of us that are doing the walk , let’s make it happen we will smash this.

£20.00

Sara Dickason

19/07/2025

Best of luck for the walk and raising funds for such an amazing cause 💖

£40.00

Katy

19/07/2025

Good luck

£20.00

Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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Masterclasses in NF: Constitutional Mismatch Repair Deficiency Syndrome as Differential Diagnosis to NF1/Legius Syndrome - Prof. Dr. Katharina Wimmer

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Eric Legius, MD, PhD, University Hospital Leuven

Prof. Ellen Denayer, University Hospital Leuven

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Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

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Masterclasses in NF: Breast Cancer in NF1

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Masterclasses in NF: Distinguishing Non-NF2-Related from NF2-Related Schwannomatosis - Clinical and Genetic Approaches

Said Farschtschi, MD, University Medical Center, Hamburg-Eppendorf, Germany

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Masterclasses in NF: NF1 Pre-Implantation Genetic Diagnosis

Eric Legius, MD, PHD, University Hospital of Leuven, Belgium

Prof. Ellen Denayer, University Hospital of Leuven, Belgium

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Prof Andrew King, MBBS FRCS FRCS(SN), Salford Royal Hospital, Manchester, United Kingdom. Member of the MAB of Nerve Tumours UK

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Dr Shruti Garg, MBBS, MRCPsych, MMedSci, PhD, Royal Manchester Children’s Hospital, United Kingdom. Member of the MAB of Nerve Tumours UK

Andre Rietman, PhD, Erasmus University Medical Center, Rotterdam, Netherlands

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Masterclasses in NF: Emotional Challenges in NF1, NF2 and Schwannomatosis

Susie Henley, DClinPsy, PhD, Guy’s and St Thomas’ NHS Foundation Trust, London UK

Thomas Pletschko, PhD, Medical University of Vienna, Austria

Verena Rosenmayr, Clinical Psychologist, Medical University of Vienna, Austria

Masterclasses in NF: NF1 Pediatric Management - Rianne Oostenbrink

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Christophe Glorion, MD, PhD, Department of Paediatric Orthopedic and Traumatologic Surgery, Hopital Necker-Enfants Malades, Paris, France. 

Masterclasses in NF: NF1 Malignant Peripheral Nerve Sheath Tumours - Rosalie Ferner and Viktor-Felix Mautner

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Viktor-Felix Mautner, MD, PhD. University Medical Centre in Hamburg-Eppendorf, Germany. Head of NF Outpatient Department

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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