Your NF questions answered directly from the Top!!
04 June 2020
Professor Rosalie Ferner, National Lead for NF1, Trustee and Member of the Nerve Tumours UK Medical Advisory Board

and Mary Thomas, Clinical Neurofibromatosis Nurse at Guy's and St Thomas' NHS Foundation Trust

have very kindly agreed to take medical questions from our members, particularly about issues that are concerning you in relation to NF in the current crisis.
They would also like you to feedback your views on how you are finding telephone consultations.
Send your questions directly to info@nervetumours.org.uk
Please remember that they cannot answer any particularly personal medical questions, but if you do have any major and immediate concerns please call the Nerve Tumours UK National Helpline on 0793 046030 that is operating each working day at present.
Filter News

Kate “NF1 Mummy” Your Questions on parenting answered: World Neurofibromatosis Day 17 May 2021
Have you got questions about your child’s NF diagnosis? Send them into us for World NF Awareness Day
Read More
Jo’s 160 Mile walk for NTUK!
Read Jo's Story as she prepares to take on a 160 mile epic walking challenge for Nerve Tumours UK.
Read More
NF2 & Identity Research Study
If you have NF2, Suzi want's to hear from you! Find out more about her research study relating identity & NF2
Read More
Challenge 100 – Everyone’s invited
Take on 100 of anything you can think of and fundraise to support our NF community!
Read More
A very “Happy Easter” to you all!
A message from Karen, our Charity Director, wishing you all a very Happy Easter!
Read More
Stuart & William’s Story: Turning blue for World NF Month
Check out Stuart & William's creative fundraiser for World Neurofibromatosis Awareness Month
Read More
Coordinated Care of Rare Diseases Study at UCL
Find out the results to the Coordinated Care of Rare Diseases Study at UCL
Read More
Who is exempt from wearing a face mask? UK exemptions rules explained - and how to get a hidden disabilities exemption
Find out the up to date information on face mask rules in your area
Read More
Carers Rights Day. Diane’s Story
Find out more about Diane's life as a carer and how more should be done for unpaid carers in the UK
Read More