World NF2 Day 2021 Emily Owen Member of our Board of Trustees Takes over our social
20 May 2021
Happy NF2 Day 2021
My name's Emily. I am a Trustee of Nerve Tumours UK and I have NF2 so, when I say 'Happy NF2 Day,' I'm not thinking that everything about NF2 is happy! I know it's not! but I do know that on NF2 Day we can unite, we can join together and we can celebrate each other and make sure that the voices of those affected with Neurofibromatosis Type 2 are heard in a changing world.
So, throughout today, at 22 minutes past the hour - 22 because NF2 is a gene defect on chromosome 22 so, 22 minutes past the hour there will be a post on NTUK's social media channels.
It will just be a little HAIKU poem, which it would be great if you comment on, or like, or share, so we can all join together and be a real NF2 family today.
So, yes, Happy NF2 Day, everyone!
![](/images/common/Artboard_1_1.jpg)
![](/images/common/Artboard_1_copy.jpg)
![](/images/common/Artboard_1_copy_2.jpg)
![](/images/common/Artboard_1_copy_3.jpg)
![](/images/common/Artboard_1_copy_4.jpg)
![](/images/common/Artboard_1_copy_5.jpg)
![](/images/common/Artboard_1_copy_6.jpg)
![](/images/common/Artboard_1_copy_7.jpg)
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Laura_26.5_mile_marathon_for_son_elliot__370x280_800_600_s_c1.png)
Laura’s Marathon effort!
Laura beats our 26.5 mile challenge and takes it to the next level - matching miles with donations, find out what she's up to
Read More![](https://nervetumours.org.uk/images/made/images/common/pexels-christina-morillo-1181307_370x280_800_600_s_c1.jpg)
Research call: Does neurofibromatosis affect how you feel about your body?
Find out how you can improve self-help methods for people living with neurofibromatosis
Read More![](https://nervetumours.org.uk/images/made/images/common/Celia_Baxter_Crafts_for_Nerve_Tumours_UK_Image_370x280_800_600_s_c1.jpg)
Stitched up by Celia
Get inspired by Celia's creative online haberdashery shop for Nerve Tumours UK!
Read More![](https://nervetumours.org.uk/images/made/images/common/Mobile_website_header_-_NF1_PN_study_-_370x280_800_600_s_c1.jpg)
NF1 with Plexiform Neurofibromas Study: information for patients and carers
Find out how you can help shape the future of NF1 healthcare
Read More![](https://nervetumours.org.uk/images/made/images/common/Changing_Faces_Covid_Impact_Survey_370x280_800_600_s_c1.jpg)
Changing Faces Impact of Covid Survey
Share your experience of covid19 with Changing Faces and help shape the support you need
Read More![](https://nervetumours.org.uk/images/made/images/common/faye_burdrige_370x280_800_600_s_c1.jpg)
Be as creative as Faye – Follow her social distance fundraising example!
Be inspired by Faye & take on your own creative fundraising idea this lockdown!
Read More![](https://nervetumours.org.uk/images/made/images/common/REiNS_Logo_Screen_Shot__370x280_800_600_s_c1.jpg)
Become an NF Patient Representative
Help fight to cure all types of NF by taking part in the latest clinical trials, find out how you can get involved.
Read More![](https://nervetumours.org.uk/images/made/images/common/Pearl_1_370x280_800_600_s_c1.jpg)
DrugStar Pearl Kelly
Find out how you can join Pearl and donate to Nerve Tumours UK simply by taking your prescribed medication
Read More![](https://nervetumours.org.uk/images/made/images/common/Helen_Swann_370x280_800_600_s_c1.jpg)
First Specialist Neurofibromatosis (NF) Nurse for Wales
We're delighted to announce the first ever Specialist NF Nurse for Wales, find out more
Read More