Working For The NF Community and Helping to Protect and Save The NHS
26 March 2020

Nerve Tumours UK is fully dedicated to the health and well-being of our NF community. We work very closely with the NHS, funding posts based within NHS Foundations, therefore sharing the work and helping to carry the financial burden. Our nurses in the hospitals around the country are carrying on as best with business as usual, supporting those with NF, their families & carers.
But now we need your help too. To keep our service intact, and to move forward when this crisis is over, we need your support now, more than ever.
We have been trying to think of inventive ways to fundraise whilst stuck indoors, so why not join our "Big House Challenge!"
There is always somewhere that is in need of some spring cleaning....a room, cupboard, old coats, old bags, etc. You are bound to find some loose change...so why not donate it to Nerve Tumours UK, on the link below!
As the saying goes, "Every little helps!" Help us to continue helping you, our community.
Please follow all guidelines, take care and stay safe!
Karen Cockburn
Charity Director
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Centre for Appearance Research - The Parenting Toolkit
Research evaluation to find out how effective ‘The Parenting Toolkit’ is at supporting parents of children with NF
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Celtic Crossing NTUK fundraiser
On Wednesday 28 June, a team of 8, led by Paul Aubery, paddled from the Isles of Scilly to Sennen Cove in Cornwall.
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NF Awareness Day Fundraiser at Fyling Hall School
Bea's school held a blue & green themed fundraiser on World NF Awareness Day
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Eden Study
Investigating early social, communication and attention development in babies who have NF1/ or a parent has NF1
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Bethany’s South Coast Challenge
Bethany is taking on the 25km South Coast challenge to give back after recovering from nerve tumour surgery
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Eden-P Research Study
Participants required for research study for pregnant women who have a family history of NF1
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Resources Survey: Initial Diagnosis
Take part in our survey and help shape Nerve Tumours UK's support service for those newly diagnosed with NF
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Appearance Collective NF1 support survey
Appearance Collective, Centre of Appearance Research (UWE) online survey on what support is needed for those affected by NF1
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