Tom GK in Lockdown
22 May 2020
Hi, I'm Tom. I am a freelance journalist, comedian and proud custodian of literally dozens of non-cancerous tumours. I'm 33 and live in Brixton and, well, there's really very little more to say.
So now the cat is out of the bag. Now everyone knows what I've known ever since I was diagnosed with NF2 eight years ago: our doctors and nurses are AMAZING. It might have looked weird at the time but maybe I should have been spending my Thursday evenings clapping outside since my very first MRI scan. All by myself. Sorry about that, guys.
The lockdown has been a funny old thing, really. In some ways it has been frustrating (of course), as life has been paused and plans have been binned. I think for someone who can struggle not to have my life dictated by illness, and particularly treasures the times that going out is easy, this has been frustrating. Yet it's also been a brilliant opportunity to - cliche alert - really learn to love the small things in life. Whether it's actually speaking to that friend who you haven't spoken with since 2013, enjoying the slow arrival of spring or mastering the art of sourdough bread. These are things that transcend worries about jobs and money and careers and having the worst disease ever.
Having NF2 can be a lonely business and it can be hard to do what we really should be doing: living everyday for the moment.

I think it's something that the "Cancer People" (I'm determined to turn this into a rivalry) do better than us with their bucket lists and things, to be honest. But now there are 60-odd million people in Britain who have all learned how precious and fragile life is, all at the same time. Maybe now we can all learn to live for the present a little more. Going back to my "Cancer vs NF2" rivalry idea, I've even come up with a slogan: "Cancer might be annoying but NF2 really gets on your nerves". I think the whole idea really has promise.
Filter News

Richard & Diana’s 1,000,000 metre new rowing challenge
Diana & Richard have taken on a 1,000,000 metre rowing challenge in 100 days to raise funds & awareness
Read More
A Message from our Charity Director
A message from Karen, our Charity Director, on looking forward to a special 2022
Read More
Childhood Neurological Conditions Survey Part 2
Find out how you can help shape the future of treatment for Childhood Neurological Conditions such as Neurofibromatosis
Read More
Graham’s Super Nine Shines A Light on NF
Graham's 7 year old great-nephew Nathan is his inspiration for his epic challenges to fundraise for NTUK
Read More
Meet Siobhan, our new Specialist Advisor for Northern Ireland
Meet Siobhan from Northern Ireland, our newest Specialist Advisor
Read More
Poppy’s NF1 story
Poppy describes growing up with NF1 and fundraising for future research & treatment
Read More
Meeting Alpha FX
NTUK Head Office visited Alpha FX to give a presentation on our work & how their support & donations help the NF Community
Read More
Nerve Tumours UK joins the Neurological Alliance
A coalition of over 70 organisations working together to transform quality of life for people with neurological conditions.
Read More