Tom GK in Lockdown
22 May 2020
Hi, I'm Tom. I am a freelance journalist, comedian and proud custodian of literally dozens of non-cancerous tumours. I'm 33 and live in Brixton and, well, there's really very little more to say.
So now the cat is out of the bag. Now everyone knows what I've known ever since I was diagnosed with NF2 eight years ago: our doctors and nurses are AMAZING. It might have looked weird at the time but maybe I should have been spending my Thursday evenings clapping outside since my very first MRI scan. All by myself. Sorry about that, guys.
The lockdown has been a funny old thing, really. In some ways it has been frustrating (of course), as life has been paused and plans have been binned. I think for someone who can struggle not to have my life dictated by illness, and particularly treasures the times that going out is easy, this has been frustrating. Yet it's also been a brilliant opportunity to - cliche alert - really learn to love the small things in life. Whether it's actually speaking to that friend who you haven't spoken with since 2013, enjoying the slow arrival of spring or mastering the art of sourdough bread. These are things that transcend worries about jobs and money and careers and having the worst disease ever.
Having NF2 can be a lonely business and it can be hard to do what we really should be doing: living everyday for the moment.
![](/images/common/WNF2Day2_-_Tom_1_1024x768.jpg)
I think it's something that the "Cancer People" (I'm determined to turn this into a rivalry) do better than us with their bucket lists and things, to be honest. But now there are 60-odd million people in Britain who have all learned how precious and fragile life is, all at the same time. Maybe now we can all learn to live for the present a little more. Going back to my "Cancer vs NF2" rivalry idea, I've even come up with a slogan: "Cancer might be annoying but NF2 really gets on your nerves". I think the whole idea really has promise.
Filter News
![](https://nervetumours.org.uk/images/made/images/common/image_(2)_370x280_800_600_s_c1.jpg)
Eden Study
Investigating early social, communication and attention development in babies who have NF1/ or a parent has NF1
Read More![](https://nervetumours.org.uk/images/made/images/common/image0_(13)_370x280_800_600_s_c1.jpg)
Bethany’s South Coast Challenge
Bethany is taking on the 25km South Coast challenge to give back after recovering from nerve tumour surgery
Read More![](https://nervetumours.org.uk/images/made/images/common/Eden_P_study_370x280_800_600_s_c1.jpg)
Eden-P Research Study
Participants required for research study for pregnant women who have a family history of NF1
Read More![](https://nervetumours.org.uk/images/made/images/common/inform_your_GP_370x280_800_600_s_c1.jpg)
Resources Survey: Initial Diagnosis
Take part in our survey and help shape Nerve Tumours UK's support service for those newly diagnosed with NF
Read More![](https://nervetumours.org.uk/images/made/images/common/NF1_(1)_370x280_800_600_s_c1.jpg)
Appearance Collective NF1 support survey
Appearance Collective, Centre of Appearance Research (UWE) online survey on what support is needed for those affected by NF1
Read More![](https://nervetumours.org.uk/images/made/images/common/Mel_swimming_370x280_800_600_s_c1.jpg)
Shine A Light - Swimming for World NF Day
Mel, one of our Specialist NF Nurses, will be swimming 17 miles to Shine a Light during World NF Month
Read More![](https://nervetumours.org.uk/images/made/images/common/UC_370x280_800_600_s_c1.jpg)
Union Chapel Stand Up for Nerve Tumours UK Comedy Fundraiser
Check out the photos from World NF Day's Comedy Fundraiser at London's Union Chapel
Read More![](https://nervetumours.org.uk/images/made/images/common/Anthea__Emily_Owen_370x280_800_600_s_c1.jpg)
Working Together: from a tentative diagnosis and beyond
Emily Owen & her mother Anthea, recount their memories of Emily's NF2 diagnosis
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