The International Rare Disease Showcase 1st – 3rd February 2022
21 January 2022
Rare Disease Showcase Series, now in its sixth year, is a celebration of innovative rare disease projects across the UK, and far beyond.
The event covers questions and topics that are relevant to the Neurofibromatosis community. Registration is free.
With the world gradually emerging from the pandemic, the importance of placing rare diseases on the global health agenda has never been greater. Equity of healthcare, inclusion, and the challenges of isolation are recognised as pressing issues worldwide, and are all challenges faced by those living with rare diseases on a daily basis.
While COVID-19 brought social isolation to many, it also opened up the world through digital meetings and connections – in this year’s showcase the organiser wants to highlight those international collaborations that are aiming to drive the field of rare diseases forward, as well as studying the differing impact and challenges of working in rare disease in different territories around the world.
The International Showcase is designed to be a unique event, with interactive sessions taking place over a three-day period, including conversations on policy, patient advocacy, access and approval, new technologies, research, and data collection. The online stage will include talks from across the rare disease spectrum, supplemented by roundtable discussions, networking sessions, one-to-one video chats, virtual exhibitions and more.
The Rare Disease Showcase is an event for everyone – whether patient group, clinician, pharmaceutical representative, consultant, researcher, or student.
Filter News
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A Gamble Across Britain
James will be cycling the length of the country this September- that's 980 miles! Find out more here:
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Nerve Tumours UK at Her Majesty The Queen’s Buckingham Palace Garden Party
Nerve Tumours UK attended one of Her Majesty The Queen's Summer Garden Parties. Find out more here:
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Dan’s Story
Dan wants everyone to know that NF1 comes in different forms. Have a read of his courageous story here:
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#MyVisibleDifference Changing Faces
#MyVisibleDifference Changing Faces - Nerve Tumours UK attended the of My Visible Difference Report by Changing Faces
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Register to attend our NF1 information day in Carlisle
The day is designed so that our specialists can give you information and insight about NF1
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Shine a Light 2019 Success!
Check out some of the stunning photos from our extremely successful Shine a Light On Neurofibromatosis 2019 campaign
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Nerve Tumours UK attends Royal College of Nursing Congress
Find out more about the RCN Congress and Nerve Tumours UK participation here:
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