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Teagan Martin’s first day at Canterbury Secondary School

13 September 2019

Teagan Martin's first day at Canterbury Secondary School

Born 15 weeks premature and weighing as much as a box of cereal Teagan was only supposed to have 24 hours to live. Fast forward 11 years later and Teagan's parents are sending her off to her first day of secondary school in Canterbury. It is a truly inspiring story which have left her parents with nothing but pride and admiration for their daughter who despite her struggles with NF continues to defy the odds and uplift those around her on a daily basis

"She’s done so well to get this far - she wasn’t meant to be here but she is. We’re well chuffed."

– Teagan's Father Ian

To read the full story then please click on the link below:

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Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

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Eric Legius, MD, PHD, University Hospital of Leuven, Belgium

Prof. Ellen Denayer, University Hospital of Leuven, Belgium

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Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

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Thomas Pletschko, PhD, Medical University of Vienna, Austria

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Masterclasses in NF: NF1 Pediatric Management - Rianne Oostenbrink

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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