Talking about Neurofibromatosis A Guide for Teens
07 August 2019
Talking about Neurofibromatosis A Guide for Teens
A new incredibly informative and useful brochure, aimed at helping teens, provided through the generosity of the Doris and Donald Schnuck Fund for Children in Need and the St. Louis Children’s Hospital Foundation has been released and you can find it by clicking on the button below.
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Nicole’s NF1 story & skydive
Nicole shares her NF1 journey and her motivation to inspire children with disabilities to achieve whatever they want to do
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Sarah’s NF1 story & Langmead fundraising
Sarah describes her daughter Hannah's NF1 journey and organising a corporate charity day fundraiser at Langmead Herbs
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Molly & Alfie
Mollie has NF1 - her big brother Alfie & friend Kaelan are running to raise awareness & funds for NTUK
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Study - Resilient Youth with NF
Adolescents with NF (12-17 years old) are wanted for an Online Harvard research project
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Jamie’s NF1 story
Jamie was inspired by reading NTUK stories and is now using his own experiences to help raise awareness of Neurofibromatosis
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CAR Relationships study
CAR survey: support materials for adults with appearance-affecting conditions, focussed on intimacy & romantic relationships
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Glasgow Comedy Night
Last night was the turn of Glasgow's The Stand Comedy Club to host the NTUK Comedy Circuit 2022
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Newcastle Comedy Night
The Stand Comedy Club in Newcastle held a great night of fun and laughter
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Nerve Tumours UK Lottery
Read how the NTUK Lottery helps make a difference to the NF Community
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