Student Voice Prize 2021
23 September 2021
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The Student Voice Prize returns for 2021 on the 6th October! The Student Voice Prize is an annual, international essay competition hosted by Findacure and Medics4RareDiseases.
The competition aims to raise the profile of rare disease within the medical field, particularly with medical students, nurses and scientists who may have never come across rare diseases in their training.
Every year, as part of the competition there is a Patient Group Pairing Scheme. The scheme gives students the chance to be paired with a rare disease patient group to learn first-hand about their condition and patient experience. It involves the student and patient group representative having a conversation over the phone or zoom for up to one hour so that the student can gather better insights into the experience of living with a rare condition. It's a great way for patient group advocates to raise awareness of their rare condition amongst the clinicians of the future, share insights and build connections!
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Mary Thomas wins Specialist Nurse of the Year 2019!
Have a read about the Guy's and St Thomas' Celebration of International Nurses Day here
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Luke and his NF Ninjas
Have a read of Luke's story of growing up with NF and how he plans to bring his chidren up proud of their NF as well.
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Stannington Community Association’s Easter Fête
Stannington Community Association's Easter Fête was a success! Read about this years superb event here:
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London Marathon 2019: 26 hard miles for 26,500 people affected
Thank you so much to all our incredible Marathon runners for going the extra mile (or 26)!
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Take a look at our new YouTube Channel
Take a look at our new YouTube channel and how to subscribe here
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Meet Pearl
Pearl Kelly is 22, and has multiple complex problems caused by her NF1. Here she explains her outlook on life
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Meet Joanna
Joanna is a lecturer in Mitochondrial Genetics at Newcastle University, she recently ran the London Marathon. Meet her here
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New Research Into Appearance Altering Conditions
Maia Thornton PhD is looking for both parents and professionals who care for someone with an appearence altering condition
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Adam’s Story
Adam has NF1 yet is still one of the most active and athletic people in the UK. Read about his fascinating story here:
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