Student Voice Prize 2021
23 September 2021

The Student Voice Prize returns for 2021 on the 6th October! The Student Voice Prize is an annual, international essay competition hosted by Findacure and Medics4RareDiseases.
The competition aims to raise the profile of rare disease within the medical field, particularly with medical students, nurses and scientists who may have never come across rare diseases in their training.
Every year, as part of the competition there is a Patient Group Pairing Scheme. The scheme gives students the chance to be paired with a rare disease patient group to learn first-hand about their condition and patient experience. It involves the student and patient group representative having a conversation over the phone or zoom for up to one hour so that the student can gather better insights into the experience of living with a rare condition. It's a great way for patient group advocates to raise awareness of their rare condition amongst the clinicians of the future, share insights and build connections!
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Appearance Matters: Prof Diana Harcourt and Maia Thornton
Find out both Diana's and Maia's views on their work and the importance of their work for people with NF:
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Jane Frances
Here Jane Frances tells us how findings from psychological research can help parents and teachers of children with NF
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Sarah’s Story
Sarah has NF1 and works full time for the NHS check out her intriguing story here
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Laura’s Story
Read about Laura's experience of undergoing surgery to remove a tumour from her spine here:
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Visible Difference Equality Law Research: summary of findings
Find out more about the results here:
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The Galloway Family and their “amazing” four year old Ruby
Have a read about the incredibly brave young Ruby Galloway (NF1) and check out their previous and future fundraiers.
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“Framing the face: History, Emotion, Transplantation” a blog from James Partridge
Find out more about the blog and what is concerns here:
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A Spooktacular Halloween day for NTUK
Find out more about the wonderful fundraising event here:
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Nicks Triathlon in Support of his daughter Eilidh
Find out more about Nick's Triathlon and his daughter's experiences with NF1 here:
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