Student Voice Prize 2021
23 September 2021
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The Student Voice Prize returns for 2021 on the 6th October! The Student Voice Prize is an annual, international essay competition hosted by Findacure and Medics4RareDiseases.
The competition aims to raise the profile of rare disease within the medical field, particularly with medical students, nurses and scientists who may have never come across rare diseases in their training.
Every year, as part of the competition there is a Patient Group Pairing Scheme. The scheme gives students the chance to be paired with a rare disease patient group to learn first-hand about their condition and patient experience. It involves the student and patient group representative having a conversation over the phone or zoom for up to one hour so that the student can gather better insights into the experience of living with a rare condition. It's a great way for patient group advocates to raise awareness of their rare condition amongst the clinicians of the future, share insights and build connections!
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NF1 stem cell research study
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Ava-Lily’s NF1 story
Ava-Lily is thriving at school despite various NF1 related difficulties - read her story
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Westminster Virtual Rare Disease Day 2022 Reception
NTUK joined the annual international event aimed at raising awareness & highlighting the needs of people with rare diseases
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Rare Disease Day 2022
Nerve Tumours UK joins events showcasing Rare Disease Day, hosted by the Genetic Alliance, on 28 February 2022
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Runderpants Winchester 2022
The Runderpants fun run makes a successful return to Winchester
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NF1 Research study with fly model
How can studying the brain of a fruit fly help with understanding of NF1?
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Stuart’s Schwannoma Story Part Two
Stuart's update takes us through the operation to remove the Schwannoma, recovery and getting back to marathon training.
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Sian & Connor’s story
Sian & Connor describe the invaluable support from NTUK during her pregnancy with baby Reuben
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Anita, aka Fat Lady Slim, is running the London Marathon for NTUK
Anita is fundraising on behalf of niece Sophie & great-niece Lexie who have NF2 by running the London Marathon
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