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Stitched up by Celia

28 January 2021

Celia, from the Scottish Highlands, continued to support Nerve Tumours UK throughout lockdown with her unique handicrafts, selling her products online.

Follow her example and get creative with your online fundraising ideas – who knows what incredible ideas you may come up with!

In her own words "My 10-year-old granddaughter was diagnosed with NF1 as a 14-month-old and the family became aware of Nerve Tumours UK from the beginning. When I retired in 2015, I realised I had more time to indulge my passion for sewing and knitting, but would soon have kitted out all the family with things they probably didn't really need, so I decided to make things for charity, and Nerve Tumours UK seemed the obvious choice.
 

I just make what I feel like as I sew and knit for pleasure...

I do not sew and knit to order as I don't want to put myself under that pressure. Selling is not easy up here in the Scottish Highlands and I have, in the past, had stalls at community markets and Christmas fairs. This was not possible in 2020, so I decided to try to sell through my Facebook page which proved more successful, though not so much fun!

I am hoping to sustain my output so, hopefully, there will be another donation for 2021!"

If you have any fundraising ideas, please contact us info@nervetumours.uk or have a look at the following.

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Shine A Light 2023

The Shine A Light 2023 campaign had 162 buildings around the UK & the Republic of Ireland lit up in blue!

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Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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Masterclasses in NF: Ophthalmologic Findings & Orthopic Eye Examination in NF1 and NF2-Related Schwannomatosis

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Masterclasses in NF: Plexiform Neurofibromas in NF1 - General Course and Neuroradiology

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Masterclasses in NF: The Patients’ Perspective: A Masterclass on NF Care Held by NF Patients

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Masterclasses in NF: Treatment Strategies for Vestibular Schwannomas: When to Treat? How to Treat?

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Masterclasses in NF: Management Of Plexiform Neurofibromatosis in NF1- Rianne Oosterbrink, Justus L Groen, Karine Lascelles

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Masterclasses in NF: Constitutional Mismatch Repair Deficiency Syndrome as Differential Diagnosis to NF1/Legius Syndrome - Prof. Dr. Katharina Wimmer

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Masterclasses in NF: Rare NF1-Associated Tumors in Adults - Eric Legius & Prof. Ellen Denayer

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Masterclasses in NF: Optimising Hearing Outcomes in NF2-Related Schwannomatosis - Simon Freeman

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Masterclasses in NF: NF1 Dermatological Manifestations - Pierre Wolkenstein, Laura Fertitta & Sirkku Peltonen

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Masterclasses in NF: Breast Cancer in NF1 - Gareth Evans

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Masterclasses in NF: NF1 Pre-Implantation Genetic Diagnosis - Eric Legius & Prof. Ellen Denayer

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NF2 Working Together: from a tentative diagnosis and beyond

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Masterclasses in NF: Emotional Challenges in NF1, NF2 and Schwannomatosis - Susie Henley, Thomas Pletschko & Verena Rosenmayr

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Masterclasses in NF: NF1 Orthopedic Manifestations - Eric Legius and Christophe Glorion

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Eric Legius, MD, PhD. Head of Clinical Genetics Department of the University Hospital Leuven, Belgium

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Masterclasses in NF: NF1 Malignant Peripheral Nerve Sheath Tumours - Rosalie Ferner and Viktor-Felix Mautner

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Masterclasses in NF - Neurofibromatosis Type 1: Cutaneous Neurofibromas - Pierre Wolkenstein and Sirkku Peltonen

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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BPNA Keynote Lecture - Prof Rosalie Ferner - Neurofibromatosis 1 in the 21st Century

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