Shine A Light 2022 Success!
18 May 2022
17th May is World Neurofibromatosis Awareness Day
Yesterday, on Tuesday 17th May 2022, we had over 200 buildings and landmarks across the UK & the Republic of Ireland, lighting up in blue, the colour of NF, to Shine A Light on Neurofibromatosis and celebrate 40 years of Nerve Tumours UK.
The global Shine A Light campaign is now in its 8th year and this was the brightest one yet, in our joint efforts to raise awareness. Around the world, hundreds of buildings lit up. Countries taking part included:
- UK & Republic of Ireland - 204
- US - 85
- Canada - 21
- Australia - 113
- Italy - 23
- Portugal - 1
- Singapore - 6
- Spain - 39
- Switzerland 1
A big thank you to every building and landmark and every person who helped us Shine A Light!
ACC Liverpool
Tower 42, London
The Palace Armagh; Armagh Gaol; Old Town Hall, Banbridge; Craigavon Civic & Conference Centre
The Kelpies, Falkirk
County Hall, Carmarthen
British Airways i360 pod Brighton
Belfast City Hall
Centre:MK, Milton Keynes
Edinburgh Castle
Burnavon Theatre, Cookstown
Whittle Arch, Coventry
Causeway Council
Civic Headquarters, Lisburn
Falkirk Wheel
Guildhall, Portsmouth
Killinchy Non Subscribing Presbyterian Church, Balloo, Newtownards
Leeds Hospital
Ranfurly House, Dungannon
Rochester Cathedral
Spinnaker Tower, Portsmouth
Bridewell, Magherafelt
40 Years - lit up on Tower 42, London
Clacton Pier
Barrow Town Hall
Ely Cathedral
Eton College Chapel
Eton College: Theatre
Mareel Cinema & Music Venue, Shetland
Mareel Cinema & Music Venue, Shetland
Grand Theatre, Swansea
City of Derry Airport
Yvonne Arnaud Theatre, Guildford
Thanks to our NF Community for Shining a Light On NF by raising awareness, taking on our Shine A Light Challenges and helping support the 26,500 with Neurofibromatosis in the UK
Filter News
Tom GK- Hearing Loss: The Musical
Find out more about the musical and how you can secure your ticket here
Read More
Nerve Tumours UK joins the “Embracing Complexity” Coalition
Find out more about the coalition we have decided to join
Read More
Researching NF1
Rory Deasy has conducted research into the treatment of children with NF1. Here he talks about his research journey.
Read More
Megan’s Journey
Megan talks about her experiences of being a student with NF and what she took away from the NF conference in San Fransico
Read More
Aldo goes to Primary School
Find out more about the book aimed at helping people understand the life of an autistic boy going through primary school here
Read More
Eva’s Races
Eva has run 3 races over the past year for NTUK, find out what has been motivating her here:
Read More
Carl’s Story in memory of his sister who had NF2
Carl recently hosted his own wrestling event in memory of his late sister, find out more on his story here:
Read More
NTUK Dolphins at the Swim Serpentine 2019
Find out more about the incredible day for all involved at Hyde Park here:
Read More