Shine A Light 2022 Success!
18 May 2022
17th May is World Neurofibromatosis Awareness Day
Yesterday, on Tuesday 17th May 2022, we had over 200 buildings and landmarks across the UK & the Republic of Ireland, lighting up in blue, the colour of NF, to Shine A Light on Neurofibromatosis and celebrate 40 years of Nerve Tumours UK.
The global Shine A Light campaign is now in its 8th year and this was the brightest one yet, in our joint efforts to raise awareness. Around the world, hundreds of buildings lit up. Countries taking part included:
- UK & Republic of Ireland - 204
- US - 85
- Canada - 21
- Australia - 113
- Italy - 23
- Portugal - 1
- Singapore - 6
- Spain - 39
- Switzerland 1
A big thank you to every building and landmark and every person who helped us Shine A Light!
ACC Liverpool
Tower 42, London
The Palace Armagh; Armagh Gaol; Old Town Hall, Banbridge; Craigavon Civic & Conference Centre
The Kelpies, Falkirk
County Hall, Carmarthen
British Airways i360 pod Brighton
Belfast City Hall
Centre:MK, Milton Keynes
Edinburgh Castle
Burnavon Theatre, Cookstown
Whittle Arch, Coventry
Causeway Council
Civic Headquarters, Lisburn
Falkirk Wheel
Guildhall, Portsmouth
Killinchy Non Subscribing Presbyterian Church, Balloo, Newtownards
Leeds Hospital
Ranfurly House, Dungannon
Rochester Cathedral
Spinnaker Tower, Portsmouth
Bridewell, Magherafelt
40 Years - lit up on Tower 42, London
Clacton Pier
Barrow Town Hall
Ely Cathedral
Eton College Chapel
Eton College: Theatre
Mareel Cinema & Music Venue, Shetland
Mareel Cinema & Music Venue, Shetland
Grand Theatre, Swansea
City of Derry Airport
Yvonne Arnaud Theatre, Guildford
Thanks to our NF Community for Shining a Light On NF by raising awareness, taking on our Shine A Light Challenges and helping support the 26,500 with Neurofibromatosis in the UK
Filter News
Mindful Parenting Study
Research study: Mindful Parenting Programme for parents or carers of children aged 4-16 living with a visible difference
Read More
Adam Buxton and some colleagues - NTUK Comedy Night
Join us at the Union Chapel, London on Thursday 24th November for the latest comedy night to celebrate 40 years of NTUK
Read More
We know 26, 500 people who need your help
To expand our Specialist Neurofibromatosis Network, we need to continue raising awareness of what we do
Read More
The New National Helpline
The National Helpline is expanding to Monday, Wednesday and Friday, from early October
Read More
London Marathon 2022
Congratulations to our 2022 London Marathon runners - thank you from the NTUK team
Read More
Hannah’s NF1 story
9 year old Hannah is running the Junior Great North Run, so other children with NF can also have access to doctors & nurses
Read More
Sam’s Marathon
Sam, our Specialist NF Nurse for Merseyside & the North West, is running the London Marathon - her very first Marathon!
Read More
NF Patients Community Day
The NF Patients Community Day is on Sunday 9th October 2022 - register to attend virtually
Read More