Shine A Light 2021 Success!
18 May 2021
May 17 is World NF Awareness Day. Another difficult year in lockdown across the country, a total of 92 iconic buildings and landmarks turned blue, the colour of NF, helping to Shine A Light on Neurofibromatosis in support of the 26,500 people affected in the UK. Making 2021 the brightest year, in the UK, since we joined the global campaign 7 years ago!
Not only that, so many of you joined in from your homes, lighting up your gardens and homes blue on World NF Day, raising awareness in your local community. All four nations took part to stand together to raise awareness for Neurofibromatosis.
On a global scale, 12 countries took part and 319 buildings and landmarks lit up in total: this is the country-by-country count
- 92 - UK
- 73 - U.S.
- 59 - Australia
- 52 - Italy
- 27 - Spain
- 9 - Canada
- 7 - Netherlands
We would like to thank every building and landmark on the list, and every person who turned their homes blue to help make this year’s Shine A Light such a fantastic success.
Let's make 17th May 2022 even more successful as we Shine A Light on Neurofibromatosis & celebrate NTUK's 40th anniversary!
Blackpool Tower

The National Theatre

Civic Centre Clock Tower, Newport

Fermanagh & Omagh District Council

Tower 42 - London

Barry Hospital - Cardiff

Bradford City Hall

Beacon Arts Centre

SSE Hydro

Our Community Turns Blue!
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Community Fundraising Call Out
Calling all community fundraisers - we need your help, please!
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Owen family Awareness Event
The event featured guest speaker Prof. Meena Upadhyaya OBE, Member of our Board of Trustees & Medical Advisory Board
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Running for Wilbur
Tim is running the Guildford 10k in October, to show support to his son Wilbur who has NF1
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Alice’s NF studies
Alice is researching healthcare experiences of individuals with NF1 for her Genetic & Genomic Counselling MSc
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Centre for Appearance Research - The Parenting Toolkit
Research evaluation to find out how effective ‘The Parenting Toolkit’ is at supporting parents of children with NF
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Celtic Crossing NTUK fundraiser
On Wednesday 28 June, a team of 8, led by Paul Aubery, paddled from the Isles of Scilly to Sennen Cove in Cornwall.
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NF Awareness Day Fundraiser at Fyling Hall School
Bea's school held a blue & green themed fundraiser on World NF Awareness Day
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Eden Study
Investigating early social, communication and attention development in babies who have NF1/ or a parent has NF1
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Bethany’s South Coast Challenge
Bethany is taking on the 25km South Coast challenge to give back after recovering from nerve tumour surgery
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