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Shine A Light 2021 Success!

18 May 2021

May 17 is World NF Awareness Day. Another difficult year in lockdown across the country, a total of 92 iconic buildings and landmarks turned blue, the colour of NF, helping to Shine A Light on Neurofibromatosis in support of the 26,500 people affected in the UK. Making 2021 the brightest year, in the UK, since we joined the global campaign 7 years ago!

Not only that, so many of you joined in from your homes, lighting up your gardens and homes blue on World NF Day, raising awareness in your local community. All four nations took part to stand together to raise awareness for Neurofibromatosis.

On a global scale, 12 countries took part and 319 buildings and landmarks lit up in total: this is the country-by-country count 

  • 92 - UK 
  • 73 - U.S.
  • 59 - Australia
  • 52 - Italy
  • 27 - Spain
  • 9 - Canada
  • 7 - Netherlands

We would like to thank every building and landmark on the list, and every person who turned their homes blue to help make this year’s Shine A Light such a fantastic success.

Let's make 17th May 2022 even more successful as we Shine A Light on Neurofibromatosis & celebrate NTUK's 40th anniversary! 

Blackpool Tower

The National Theatre

Civic Centre Clock Tower, Newport

Fermanagh & Omagh District Council

Tower 42 - London

Barry Hospital - Cardiff

Bradford City Hall

Beacon Arts Centre

SSE Hydro

Our Community Turns Blue!

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Masterclasses in NF: Optimising Hearing Outcomes in NF2-Related Schwannomatosis - Simon Freeman

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Masterclasses in NF: NF1 Dermatological Manifestations - Pierre Wolkenstein, Laura Fertitta & Sirkku Peltonen

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Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

Masterclasses in NF: Breast Cancer in NF1 - Gareth Evans

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Masterclasses in NF: Pain in Non-NF2-Related Schwannomatosis - David Pang

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Masterclasses in NF: Distinguishing Non-NF2-Related from NF2-Related Schwannomatosis - Clinical and Genetic Approaches - Said Farschtschi

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Masterclasses in NF: NF1 Pre-Implantation Genetic Diagnosis - Eric Legius & Prof. Ellen Denayer

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Eric Legius, MD, PHD, University Hospital of Leuven, Belgium

Prof. Ellen Denayer, University Hospital of Leuven, Belgium

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Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

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Masterclasses in NF: Surgery in NF2 - Michel Kalamarides & Andrew King

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Masterclasses in NF: NF1 Pediatric Management - Rianne Oostenbrink

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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