Shine a Light 2020 Success!
18 May 2020
May 17 is World NF Awareness Day. The world may be struck by the Covid 19 crisis, but yesterday we had 83 iconic buildings and landmarks across the UK yet again shining a light on Neurofibromatosis in support of those affected by nerve tumours. This year we have asked the buildings to send us photos directly as you could not go out amidst current restrictions yourself.
Additionally we are very grateful for your photos of your homes and gardens lighting up in blue on World NF day raising awareness for the 26,500 affected in the UK alone. Globally 170 buildings lit up on the day, down from over 300 from last year, but the UK counted for nearly half of the total! We all stand together across borders to raise awareness for Neurofibromatosis.
All buildings/landmarks that helped "Shine A Light On Neurofibromatosis" this year
We would like to give a massive thank you to every building and landmark on the list above that helped make this year's Shine A Light such a success.
BFI Imax
National Theatre
Penshaw Monument
Beacon of Light
Carolyn Garden
Enniskillen Castle
O2 Guidllhall
Chloe Garden
Worcester University Arena
Herne Bay Clock Tower
Rosalie Wimbledon
Friary Centre
Ursula
Salesforce Tower
Steve Prescott Bridge
Jane
Filter News
Meet Helen
Helen is the Specialist NF Advisor for Devon and Cornwall and is based at Derriford Hospital in Plymouth.
Read MoreMeet Rebecca
Specialist NF Nurse Rebecca is Lead Nurse, NTUK and is based at the Genetics Institute at the Centre for Life in Newcastle
Read MoreWorld Mental Health Day 2023
NTUK (as part of the Neurological Alliance) has signed a joint letter aimed at improving access to mental health services
Read MoreCAR Research visible difference experiences during recruitment
Research participants required, find out more and take part
Read MoreOliver Bromley’s NF Story
Oliver Bromley, with NF1, was asked to leave a restaurant due to his appearance, sparking a call for greater awareness and ed
Read MoreNF Academy 2023 - Ella’s Blog
Ella, who has NF1, attended the week-long 2023 NF Academy in Portugal, meeting young adults with NF from all over Europe
Read MoreUniversity of Manchester Research
Read about the latest PHD research, involving Nerve Tumours UK, at the University of Manchester
Read MoreNew Research Study for Children and Young People with NF1
Find out more about the study and how you can participate here
Read MoreNeurofibromatosis Type 2 name change
The new name for Neurofibromatosis Type 2 is NF2-related-Schwannomatosis (NF2)
Read More