Shine a Light 2020 Success!
18 May 2020
May 17 is World NF Awareness Day. The world may be struck by the Covid 19 crisis, but yesterday we had 83 iconic buildings and landmarks across the UK yet again shining a light on Neurofibromatosis in support of those affected by nerve tumours. This year we have asked the buildings to send us photos directly as you could not go out amidst current restrictions yourself.
Additionally we are very grateful for your photos of your homes and gardens lighting up in blue on World NF day raising awareness for the 26,500 affected in the UK alone. Globally 170 buildings lit up on the day, down from over 300 from last year, but the UK counted for nearly half of the total! We all stand together across borders to raise awareness for Neurofibromatosis.
All buildings/landmarks that helped "Shine A Light On Neurofibromatosis" this year
We would like to give a massive thank you to every building and landmark on the list above that helped make this year's Shine A Light such a success.
BFI Imax
![](/images/common/BFI_2_-1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
National Theatre
![](/images/common/National_Theatre_-_1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Penshaw Monument
![](/images/common/Penshaw_Monument_1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Beacon of Light
![](/images/common/Beacon_of_Light-1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Carolyn Garden
![](/images/common/Carolyn_Garden-1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Enniskillen Castle
![](/images/common/Enniskillen_Castle_1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
O2 Guidllhall
![](/images/common/O2_Guildhall__Southampton_1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Chloe Garden
![](/images/common/Chloe_-_Student_Nurse_Chronicles_-_Garden_Light_up.jpg)
Worcester University Arena
![](/images/common/Worcester_University_Arena_1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Herne Bay Clock Tower
![](/images/common/Herne_Bay_Clocktower_1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Rosalie Wimbledon
![](/images/common/Rosalie_-1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Friary Centre
![](/images/common/Friary_Centre_1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Ursula
![](/images/common/Ursula_Quigley_-_Shine_A_Light_Candle_World_Awareness_Day.jpg)
Salesforce Tower
![](/images/common/Salesforce_Tower_at_Night_1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Steve Prescott Bridge
![](/images/common/Steve_Prescott_Bridge_1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Jane
![](/images/common/Jane_from_Glasgow_1024x768.jpg)
Filter News
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New research into non-discrimination law
Durham University is looking for participants who look different due to their health complications. such as NF.
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Letter from our new Chair
A letter detailing the vision of our new chair, and the future of the charity.
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Launch of Nerve Tumours UK
Following a major strategic review, the Neuro Foundation charity is now known as Nerve Tumours UK.
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NF1 research award first for UK consultant
Dr Shruti Garg is the first non-US resident to receive NF1 $555,000 research award.
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Polly’s Story (as told by Mum Emily)
"Despite being on weekly chemotherapy she is a happy child and never fails to inspire us all"
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EDEN Study Progress Report
The EDEN study has enrolled 30 babies and toddlers to understand how infants with NF1 develop.
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Ella’s story
Have a read of Ella's story here. An uphill battle which we know she will turn around!
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Grace’s Story
Have a read of Grace's story and she overcame her insecurites surrounding her NF
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Helpful Charities
Find some of the other helpful charities that may be able to support you here
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