Share your Covid-19 Story - Survey Results
01 March 2021
Many of our NF community speak of difficulties accessing support throughout the crisis and adapting to the varying changing restrictions. In order to understand this better we as members of the Embracing Complexity Coalition want to hear from you. The coalition is made up of over 50 organisations who are all working together to coordinate campaigning and research focussed on neurodevelopmental conditions (NDCs), such as Neurofibromatosis. Embracing Complexity is very grateful for your participation in taking part in their survey.
Having shared your experiences of Covid-19 – whether positive or negative, you helped to develop recommendations for reducing the negative impact on people with Neurofibromatosis. Ensuring that moving forward, in the event of future lockdowns & prolonged social distancing, we can protect those that are vulnerable, as well as making sure that any positive experiences of some people with Neurofibromatosis in lockdown are not reversed as society begins to open up.
Learning from lockdown to support those who think differently.
Nerve Tumours UK is not responsible for any data management and content of the research.
Filter News
Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
Find out more about the technology being developed and how it can be used to prevent/decline vision loss in NF1 patients
Read MoreNerve Tumours UK Dolphins Family and Friends
Our new fundraising hub has it's first fundraiser! Find out more here:
Read MoreRuby Galloway (NF1) is thrown an incredible sleepover!
Ruby Galloway receives her own incredible sleepover after being nominated by nearly half of Plymouth! Find out more here:
Read MoreJonny’s Story
Jonny has chosen to open up and share his incredibly brave battle with Cancer over the past year, find out more here:
Read MoreJames on Tour
James Wiggin is taking on the Tour de France on behalf of Nerve Tumours UK – or at least a part of it.
Read MoreNerve Tumours UK Specialist Neurofibromatosis Nurses attend the National NF1 Meeting in Manchester
Have a read what was talked about at this year's National NF1 Meeting in Manchester
Read MoreLet’s Go Regional/ Let’s Go Outside
Read about the website that offers new exciting opportunities to help you find a fundraiser/event that is most suited to you
Read MoreMeet Harley
Have a read about the amazing 7 year old boy with NF1 and his fundraising family
Read MoreFunny Peculiar
Peculiar Productions has chosen to donate all their proceedings to NTUK this year! Find out more:
Read More