Helpline 07939 046 030

Ruby Galloway (NF1) is thrown an incredible sleepover!

10 July 2019

Ruby Galloway (NF1) is thrown an incredible sleepover!

At just 4 years old Ruby Galloway has been courageously battling against her NF1. 

Recently however she was thrown an incredible sleepover at the hands of Plym TeePee parties run by Claire Shaw and her daughter Nicole.

Ruby received the gift after "nearly half of Plymouth" voted for her to receive the gift, which conveys the respect and love that Ruby's community has for her and brave attitude to dealing with her condition. 

Ruby at her sleepover

If you would like to read more about Ruby's sleepover, including Claire and Nicole's reasoning behind their incredibly kind gesture then you can do so by clicking on the link below:

Ruby's family is also set to hold their own Masquerade Ball fundraiser which is set to take place at the New Continental Hotel on October 25th.

"It has been overwhelming with the many kind hearted people we have met and been in touch with since we planned the charity event that we are holding in October. Us as a family are trying to get as much awareness out there as possible about Neurofibromatosis and have even decide to hold another fundraising event next month where anyone who are are willing to be waxed or have their head shaved will raise money for Nerve Tumours UK"

– Mum Katie

Everyone at Nerve Tumours UK would like to say thank you to the Galloway family for all their efforts, including putting on what is sure to be a fantastic ball and we would also like to commemorate Ruby for being the incredible young girl that she is! 

If you would like to attend the Galloway's ball you can find the link to their event below:

The Galloway Family

Filter News

Filter by Date
Category
Reset

“Charity Shave Off” for NF in Northern Ireland

Janice and her family recently held a charity shave off in Northern Ireland. Find out more about the event here:

Read More

Noreen’s story

Have a read of Noreen's incredibly moving story here:

Read More

New Research Study for Children and Young People with Neurofibromatosis Type 1

Find out more about the study and how you can participate here:

Read More

Blackpool Magic Convention 2020

Find out more about the convention in aid of NTUK and how you can get involved here:

Read More

Reflections on 2019

Check out our reflection on what we feel was an incredibly succesful 2019 for the charity:

Read More

Ella’s editorial

Have a read of Ella's editorial as she shares her brave journey against NF1 with us!

Read More

Helen’s Story as told by her Mum Pauline

Due to her NF1, Helen has faced several struggles. Mum Pauline has openly shared her daughter's experiences with us here:

Read More

Nicola’s NF2 Journey

Nicola creates her own YouTube videos to help promote NF2 awareness. Find out more about her NF2 journey here:

Read More

Making the Future of Work inclusive of persons with disability

Check out James' recent presentation at a conference in Geneva highlighting issues of "face equality" in the workplace

Read More