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Rotary’s Summer Evening Jazz Concert in aid of NTUK

23 September 2019

Rotary's Summer Evening Jazz Concert in aid of NTUK

Thank you so much to Rotary, Club of Ingatestone for putting on their fantastic Summer Evening Jazz concert in aid of Nerve Tumours UK last July. The event, which saw over 700 people attend, took place in the gardens of historic Ingatestone Hall and was host to two magnificent styles of Jazz. 

The Salty Town Six were the first to play their marvellous New Orleans Traditional Jazz style, which was followed by two incredible performances by the Jive Aces. 

Nerve Tumours UK would like to thank everyone involved for putting on such a wonderful event 😊

If you would like to find out more about the event you can do so by clicking on the link below:

Find out more

Our Trustee Richard Goode with Neil Macalister, President of the Rotary Club of Ingatestone

Richard Goode collected the donation from Neil in person earlier last week

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Aldo goes to Primary School

Find out more about the book aimed at helping people understand the life of an autistic boy going through primary school here

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Eva’s Races

Eva has run 3 races over the past year for NTUK, find out what has been motivating her here:

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NTUK Dolphins at the Swim Serpentine 2019

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Rotary’s Summer Evening Jazz Concert in aid of NTUK

Find out more about the amazing Jazz Concert that was hosted in aid of NTUK here:

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Find out more about the 2019 NF Conference being hosted by our friends across the pond the CTF

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Support Specialist: One of Many Cases

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Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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Eric Legius, MD, PhD, University Hospital Leuven

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Pierre Wolkenstein, MD, PhD, Hopital Henri-Mondor, Paris, France

Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

Masterclasses in NF: Breast Cancer in NF1 - Gareth Evans

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Gareth Evans, MD, University of Manchester, UK

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Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

NF1 Working Together Part 2: from a tentative diagnosis and beyond

Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

NF1 Working Together Part 1: from a tentative diagnosis and beyond

Understanding  the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

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Michel Kalamarides, MD, PhD, Hôpital Pitié-Salpêtrière, Paris, France

Prof Andrew King, MBBS FRCS FRCS(SN), Salford Royal Hospital, Manchester, United Kingdom. Member of the MAB of Nerve Tumours UK

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Dr Shruti Garg, MBBS, MRCPsych, MMedSci, PhD, Royal Manchester Children’s Hospital, United Kingdom. Member of the MAB of Nerve Tumours UK

Andre Rietman, PhD, Erasmus University Medical Center, Rotterdam, Netherlands

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Susie Henley, DClinPsy, PhD, Guy’s and St Thomas’ NHS Foundation Trust, London UK

Thomas Pletschko, PhD, Medical University of Vienna, Austria

Verena Rosenmayr, Clinical Psychologist, Medical University of Vienna, Austria

Masterclasses in NF: NF1 Pediatric Management - Rianne Oostenbrink

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK