Research call: Does neurofibromatosis affect how you feel about your body?
28 January 2021
Kate Adkins is a researcher and Trainee Clinical Psychologist based at the University of Sheffield. As part of her doctoral research, she is interested in improving self-help interventions for people living with neurofibromatosis and dermatological conditions.
If neurofibromatosis affects how you feel about your body, please consider helping psychologists test a 1-week online writing intervention. By taking part you will be helping us learn whether the intervention could help improve body image for other individuals living with a range of dermatological conditions and be in with a chance to win a £50 voucher of your choice.
Who can take part?
Anyone:
- Age 18 or over.
- Living with a condition that affects the skin (e.g. neurofibromatosis).
- Who feels their condition negatively impacts how they feel about their body.
- Able to read and write in English.
What will it involve?
You will be asked to complete three 15-minute online writing tasks over the course of a week. You will also be asked to complete several questionnaires before the first writing task, after the final writing task and one month later. As this is a randomised controlled trial, you will be randomly assigned to either: (1) the writing intervention or (2) a control writing task. If you are allocated to the control tasks, you will have access to the intervention material at the end of the study.
Please follow the link below to find out more.
Please contact Dr Kate Adkins (Trainee Clinical Psychologist, University of Sheffield) via k.adkins@sheffield.ac.uk for further information.
Filter News

Artificial Intelligence & Disability Recruitment
Creating fair processes for people with disabilities by the HR teams that are using artificial intelligence/face recognition
Read More
It’s a Kind of Magic
Mike Brennan has had to deal with the stigma as well as the symptoms of NF1, which he has battled since he was a young child.
Read More
Centre for Appearance Research (CAR) and The VTCT Foundation Virtual Showcase 28th July 2020
Get the latest updates on the Centre for Appearance Research's work into helping people with Visible Difference
Read More
Specialist Neurofibromatosis Nurse - Wales
Find out more about our latest position available in Wales
Read More
Covid-19 Impact on Wellbeing in Families of Children with Rare Neurogenetic Disorders (CoIN Study)
Find out how you can get involved
Read More
Julie Ann Evans
Learn how to navigate the benefits system for people with NF & how to approach Personal Independence Payments (PIP)
Read More
Katie’s Story
Read Katie's inspirational NF Story & how she uses running to overcome her problems
Read More
#OneMoreNurse
We need your help to continue our Specialist Neurofibromatosis Support Network
Read More
NF1 Army’s incredible 10 million steps fundraiser!
read about team 10 million steps fantastic lockdown fundraising efforts
Read More