Research call: Does neurofibromatosis affect how you feel about your body?
28 January 2021
Kate Adkins is a researcher and Trainee Clinical Psychologist based at the University of Sheffield. As part of her doctoral research, she is interested in improving self-help interventions for people living with neurofibromatosis and dermatological conditions.
If neurofibromatosis affects how you feel about your body, please consider helping psychologists test a 1-week online writing intervention. By taking part you will be helping us learn whether the intervention could help improve body image for other individuals living with a range of dermatological conditions and be in with a chance to win a £50 voucher of your choice.
Who can take part?
Anyone:
- Age 18 or over.
- Living with a condition that affects the skin (e.g. neurofibromatosis).
- Who feels their condition negatively impacts how they feel about their body.
- Able to read and write in English.
What will it involve?
You will be asked to complete three 15-minute online writing tasks over the course of a week. You will also be asked to complete several questionnaires before the first writing task, after the final writing task and one month later. As this is a randomised controlled trial, you will be randomly assigned to either: (1) the writing intervention or (2) a control writing task. If you are allocated to the control tasks, you will have access to the intervention material at the end of the study.
Please follow the link below to find out more.
Please contact Dr Kate Adkins (Trainee Clinical Psychologist, University of Sheffield) via k.adkins@sheffield.ac.uk for further information.
Filter News

Virtual Medical Meetings
Conferences in 2020 went online meaning the whole nursing team and key members of the head office were able to attend
Read More
Connection Coalition
NTUK joined the Connection Coalition with the aim of working together to build strong relationships & connected communities
Read More
Rare Disease Day 2021
Nerve Tumours UK joined events showcasing Rare Disease Day hosted by the Genetic Alliance on 28 February 2021
Read More
Kate, NF Mummy Community & Support
Kate tells us why she started the NF1 Mummy community group online
Read More
Alex’s story - Support in the Workplace
Alex Hetherington shares how iNForming his work colleagues about his neurofibromatosis created a supportive work environment
Read More
A Colourful 5K Challenge
Read Emma's incredible awareness raising activities for NF in her local community, Liverpool.
Read More
Our NF community share why they are taking on the World NF Day: 2.6 mile Garden Challenge!
Taking part in the World NF Day: 2.6 Garden Challenge - We want to hear from you!
Read More
Nerve Tumours UK takes part in the Genomics Showcase
Find out how you can take part in the Genomics showcase – sign up for free!
Read More
Kate “NF1 Mummy” Your Questions on parenting answered: World Neurofibromatosis Day 17 May 2021
Have you got questions about your child’s NF diagnosis? Send them into us for World NF Awareness Day
Read More