Rarefest 2020
20 November 2020
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The festival covers Neurofibromatosis and has various speakers from the NF community as part of its program.
In true 2020 style, RAREfest20 promises to be a virtual feast that will spark curiosity, challenge perceptions, inspire innovation and collaboration and give a voice to rare disease patients and their families.
RAREfest20 has patients at its heart with science and technology running through its veins! The full live programme is ready to view in the agenda tab above. For a peek of what you can expect, head to our highlights, speakers and exhibitors’ pages brimming with cool companies, scientists, tech experts, health pros and patients taking part.
Open to the general public, patients, families, children, students, healthcare professionals, researchers, companies. To everyone!
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NF Said
Daisy takes on a 38-mile running challenge for her sister Millie, 1 mile a day for every person diagnosed with NF2 a year
Read More![](https://nervetumours.org.uk/images/made/images/common/1_800_600_s_c1.png)
Love Yourself - Hour of Power in Support of the NF community
Get your sweat on and spread the love this Valentine's day for our NF community!
Read More![](https://nervetumours.org.uk/images/made/images/common/Patrick_Walk_Day_1_image_2_370x280_800_600_s_c1.png)
Pat’s NF Fundraiser Walk
Read all about Patrick's incredible fundraising efforts to help others affected by NF!
Read More![](https://nervetumours.org.uk/images/made/images/common/Laura_26.5_mile_marathon_for_son_elliot__370x280_800_600_s_c1.png)
Laura’s Marathon effort!
Laura beats our 26.5 mile challenge and takes it to the next level - matching miles with donations, find out what she's up to
Read More![](https://nervetumours.org.uk/images/made/images/common/pexels-christina-morillo-1181307_370x280_800_600_s_c1.jpg)
Research call: Does neurofibromatosis affect how you feel about your body?
Find out how you can improve self-help methods for people living with neurofibromatosis
Read More![](https://nervetumours.org.uk/images/made/images/common/Celia_Baxter_Crafts_for_Nerve_Tumours_UK_Image_370x280_800_600_s_c1.jpg)
Stitched up by Celia
Get inspired by Celia's creative online haberdashery shop for Nerve Tumours UK!
Read More![](https://nervetumours.org.uk/images/made/images/common/Mobile_website_header_-_NF1_PN_study_-_370x280_800_600_s_c1.jpg)
NF1 with Plexiform Neurofibromas Study: information for patients and carers
Find out how you can help shape the future of NF1 healthcare
Read More![](https://nervetumours.org.uk/images/made/images/common/Changing_Faces_Covid_Impact_Survey_370x280_800_600_s_c1.jpg)
Changing Faces Impact of Covid Survey
Share your experience of covid19 with Changing Faces and help shape the support you need
Read More![](https://nervetumours.org.uk/images/made/images/common/faye_burdrige_370x280_800_600_s_c1.jpg)
Be as creative as Faye – Follow her social distance fundraising example!
Be inspired by Faye & take on your own creative fundraising idea this lockdown!
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