RARE Champion of Hope Celebration
20 October 2020
Groundbreakers. Leaders. Advocates.
The rare disease community is full of people who inspire us all through innovation, research, compassion and a relentless spirit to affect positive change. Through the RARE Champion of Hope Awards, we honor and recognize true champions for rare disease. This year we will be recognizing leaders who have made a significant impact in advocacy, industry, medical care, science, as well as up-and-coming rare disease leaders. Awardees will be announced at this year’s RARE Champion of Hope Celebration.
Register for your place at the RARE Champion of Hope Celebration, taking place 12th November 2020, 7pm-8pm. RSVP today for a virtual gala; experience exciting food and drink demos, entertaining performances, and inspiring stories of hope from the rare disease community.
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Michael_Fry_Preview_Coronavirus_Statement_370x280_800_600_s_c1.png)
Statement by Michael Fry our Chair of the Board of Trustees
The impact of the corona virus on the charity sector and Nerve Tumours UK's continued support to those affected by NF
Read More![](https://nervetumours.org.uk/images/made/images/common/person-holding-blue-ballpoint-pen-on-white-notebook-669610nologopreview_800_600_s_c1.png)
NF1, Plexiform Neurofibromas Market Research Study
Find out more about an NF1, Plexiform Neurofibromas market research survey
Read More![](https://nervetumours.org.uk/images/made/images/common/Rebecca_Rennison__Rachel_Jonesa_800_600_s_c1.png)
Statement by Rachel Jones & Rebecca Rennison our Specialist Neurofibromatosis Nurses UK
A statement on coronavirus by Rachel Jones & Rebecca Rennison specialist Neurofibromatosis nurses in the North East & Cumbria
Read More![](https://nervetumours.org.uk/images/made/images/common/samantha-gaden_370x280_800_600_s_c1.png)
Statement by Samantha Gaden our Specialist Neurofibromatosis Nurse UK
A statement on coronavirus by Samantha Gaden specialist Neurofibromatosis nurse in the North West
Read More![](https://nervetumours.org.uk/images/made/images/common/melanie-murrell_3_800_600_s_c1.png)
Statement by Melanie Murrell our Specialist Neurofibromatosis Nurse UK
A statement on coronavirus by Melanie Murrell specialist Neurofibromatosis nurse in the West Midlands
Read More![](https://nervetumours.org.uk/images/made/images/common/carolyn-smyth_370x280_800_600_s_c1.png)
Statement by Carolyn Smyth Lead Specialist Neurofibromatosis Nurse UK
A Statement on Coronavirus by Carolyn Smyth Lead Specialist Neurofibromatosis Nurse UK
Read More![](https://nervetumours.org.uk/images/made/images/common/martin-sanchez-Tzoe6VCvQYg-unsplash_370x270_800_600_s_c1.png)
COVID - 19 News from Children’s Tumour Foundation our partners in the US
Covid - 19 News from Children's Tumour Foundation our partners in the US
Read More![](https://nervetumours.org.uk/images/made/images/common/NF_Nurses_370x280_800_600_s_c1.jpg)
Working For The NF Community and Helping to Protect and Save The NHS
Coronavirus is impacting the NHS heavily including our Specialist NF Nurses; help us support them, find out how
Read More![](https://nervetumours.org.uk/images/made/images/common/top-header-rotary-logo-and-name370x280_800_600_s_c1.png)
Leighton Linslade Rotary Club hosts Brains of Leighton Buzzard Quiz
Leighton Linslade Rotary Club hosts Quiz in aid of Neurofibromatosis type 2, find out more here
Read More