RARE Champion of Hope Celebration
20 October 2020
Groundbreakers. Leaders. Advocates.
The rare disease community is full of people who inspire us all through innovation, research, compassion and a relentless spirit to affect positive change. Through the RARE Champion of Hope Awards, we honor and recognize true champions for rare disease. This year we will be recognizing leaders who have made a significant impact in advocacy, industry, medical care, science, as well as up-and-coming rare disease leaders. Awardees will be announced at this year’s RARE Champion of Hope Celebration.
Register for your place at the RARE Champion of Hope Celebration, taking place 12th November 2020, 7pm-8pm. RSVP today for a virtual gala; experience exciting food and drink demos, entertaining performances, and inspiring stories of hope from the rare disease community.
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Childhood_Neurological_Conditions_Survey_Website_Header_370x280_800_600_s_c1.png)
Childhood Neurological Conditions Survey Part 2
Find out how you can help shape the future of treatment for Childhood Neurological Conditions such as Neurofibromatosis
Read More![](https://nervetumours.org.uk/images/made/images/common/HCTN0411_370x280_800_600_s_c1.jpg)
Graham’s Super Nine Shines A Light on NF
Graham's 7 year old great-nephew Nathan is his inspiration for his epic challenges to fundraise for NTUK
Read More![](https://nervetumours.org.uk/images/made/images/common/Siobhan_Harding-Lester_370x280_800_600_s_c1.jpg)
Meet Siobhan, our new Specialist Advisor for Northern Ireland
Meet Siobhan from Northern Ireland, our newest Specialist Advisor
Read More![](https://nervetumours.org.uk/images/made/images/common/Poppy_1_370x280_800_600_s_c1.jpg)
Poppy’s NF1 story
Poppy describes growing up with NF1 and fundraising for future research & treatment
Read More![](https://nervetumours.org.uk/images/made/images/common/IMG_4646_370x280_800_600_s_c1.jpg)
Meeting Alpha FX
NTUK Head Office visited Alpha FX to give a presentation on our work & how their support & donations help the NF Community
Read More![](https://nervetumours.org.uk/images/made/images/common/NA_logo_370x280_800_600_s_c1.jpg)
Nerve Tumours UK joins the Neurological Alliance
A coalition of over 70 organisations working together to transform quality of life for people with neurological conditions.
Read More![](https://nervetumours.org.uk/images/made/images/common/IMG_4791_370x280_800_600_s_c1.jpg)
Nerve Tumours UK Conference 2021
The first meeting since 2019 with our Specialist NF Advisors & Nurses, Head Office & Members of the Board of Trustees
Read More![](https://nervetumours.org.uk/images/made/images/common/Wing_Walk_Ailsa_photo_on_wing_waving_370x280_800_600_s_c1.jpg)
Tricia’s Wingwalk fundraiser
Tricia describes her wingwalk experience in celebration of her 75th birthday and in memory of her daughter Sarah, who had NF1
Read More