RARE Champion of Hope Celebration
20 October 2020
Groundbreakers. Leaders. Advocates.
The rare disease community is full of people who inspire us all through innovation, research, compassion and a relentless spirit to affect positive change. Through the RARE Champion of Hope Awards, we honor and recognize true champions for rare disease. This year we will be recognizing leaders who have made a significant impact in advocacy, industry, medical care, science, as well as up-and-coming rare disease leaders. Awardees will be announced at this year’s RARE Champion of Hope Celebration.
Register for your place at the RARE Champion of Hope Celebration, taking place 12th November 2020, 7pm-8pm. RSVP today for a virtual gala; experience exciting food and drink demos, entertaining performances, and inspiring stories of hope from the rare disease community.
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We know 26, 500 people who need your help
To expand our Specialist Neurofibromatosis Network, we need to continue raising awareness of what we do
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The New National Helpline
The National Helpline is expanding to Monday, Wednesday and Friday, from early October
Read More![](https://nervetumours.org.uk/images/made/images/common/NTUK_office_team__Sam_370x280_800_600_s_c1.jpg)
London Marathon 2022
Congratulations to our 2022 London Marathon runners - thank you from the NTUK team
Read More![](https://nervetumours.org.uk/images/made/images/common/Hannah_1_370x280_800_600_s_c1.jpg)
Hannah’s NF1 story
9 year old Hannah is running the Junior Great North Run, so other children with NF can also have access to doctors & nurses
Read More![](https://nervetumours.org.uk/images/made/images/common/Sam_Gaden_marathon_2_370x280_800_600_s_c1.jpg)
Sam’s Marathon
Sam, our Specialist NF Nurse for Merseyside & the North West, is running the London Marathon - her very first Marathon!
Read More![](https://nervetumours.org.uk/images/made/images/common/2022_Manchester_370x280_800_600_s_c1.jpg)
NF Patients Community Day
The NF Patients Community Day is on Sunday 9th October 2022 - register to attend virtually
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Appearance, Identity & Law workshop
Appearance, identity & law workshop at Queen Mary University London School of Law
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Alfred the Pirate
Seven year old Alfred the Pirate takes NF1 in his stride, and is supported by Specialist NF Nurse Mel
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