Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
17 July 2019
Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
The following has been taken from Health Data Management's website
"A Children’s National researcher, Marius George Linguraru, has been awarded a Congressionally Directed Medical Research Program grant through the Department of Defense. This grant enables Linguraru to develop a quantitative MRI application that can inform treatment decisions by accurately identifying which children with neurofibromatosis type 1 (NF1) and optic pathway glioma (OPG) are at risk of losing their vision
This project will provide doctors with certainty when identifying which children with NF1-OPG will lose vision—and when the vision loss will occur—through computational modeling validated in clinics worldwide. Using Linguraru's technology, diagnosis can occur before visual acuity starts to decline, providing an opportunity for early intervention in children at risk for vision loss.
Early diagnosis and treatment can help to avoid lifelong visual impairment for patients who need intervention while preventing unnecessary MRIs and aggressive chemotherapy in pediatric patients who are not at risk of vision loss."
Filter News
Milton Keynes NF1 Medical Information Day 2026
Our Milton Keynes NF1 Medical Information Day was on 9 May 2026.
Read More
Beyond Diagnosis: Manchester Community Festival 2026
NF1 and Noonan Syndrome Community Festival. A Day connected to community, learning and curiosity.
Read More
Evie’s NF1 story
Evie's mam Emily & brother Riley are doing 5k/day during May, after Evie was diagnosed with NF1 at the age of three.
Read More
Sacred Heart Chorus and Orchestra Summer Concert
Sacred Heart Chorus and Orchestra are supporting the charity with a concert at Sacred Heart Church Wimbledon
Read More
Team NTUK London Marathon 2026
Congratulations and thank you to Team NTUK for their epic efforts!
Read More
Living with Neurofibromatosis Type 1: A Journey of Resilience, Transformation, and Impact
Our charity ambassador, Amit Ghose, shares his inspirational story.
Read More
London Marathon Motivation 2026
Find out why our Team NTUK runners are taking on the 2026 London Marathon.
Read More
Rare Disease Day 2026: Equity for Rare
A look back on Rare Disease Day: Equity for Rare, 28 February 2026.
Read More