Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
17 July 2019
Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
The following has been taken from Health Data Management's website
"A Children’s National researcher, Marius George Linguraru, has been awarded a Congressionally Directed Medical Research Program grant through the Department of Defense. This grant enables Linguraru to develop a quantitative MRI application that can inform treatment decisions by accurately identifying which children with neurofibromatosis type 1 (NF1) and optic pathway glioma (OPG) are at risk of losing their vision
This project will provide doctors with certainty when identifying which children with NF1-OPG will lose vision—and when the vision loss will occur—through computational modeling validated in clinics worldwide. Using Linguraru's technology, diagnosis can occur before visual acuity starts to decline, providing an opportunity for early intervention in children at risk for vision loss.
Early diagnosis and treatment can help to avoid lifelong visual impairment for patients who need intervention while preventing unnecessary MRIs and aggressive chemotherapy in pediatric patients who are not at risk of vision loss."
Filter News
![](https://nervetumours.org.uk/images/made/images/common/image_(2)_370x280_800_600_s_c1.jpg)
Eden Study
Investigating early social, communication and attention development in babies who have NF1/ or a parent has NF1
Read More![](https://nervetumours.org.uk/images/made/images/common/image0_(13)_370x280_800_600_s_c1.jpg)
Bethany’s South Coast Challenge
Bethany is taking on the 25km South Coast challenge to give back after recovering from nerve tumour surgery
Read More![](https://nervetumours.org.uk/images/made/images/common/Eden_P_study_370x280_800_600_s_c1.jpg)
Eden-P Research Study
Participants required for research study for pregnant women who have a family history of NF1
Read More![](https://nervetumours.org.uk/images/made/images/common/inform_your_GP_370x280_800_600_s_c1.jpg)
Resources Survey: Initial Diagnosis
Take part in our survey and help shape Nerve Tumours UK's support service for those newly diagnosed with NF
Read More![](https://nervetumours.org.uk/images/made/images/common/NF1_(1)_370x280_800_600_s_c1.jpg)
Appearance Collective NF1 support survey
Appearance Collective, Centre of Appearance Research (UWE) online survey on what support is needed for those affected by NF1
Read More![](https://nervetumours.org.uk/images/made/images/common/Mel_swimming_370x280_800_600_s_c1.jpg)
Shine A Light - Swimming for World NF Day
Mel, one of our Specialist NF Nurses, will be swimming 17 miles to Shine a Light during World NF Month
Read More![](https://nervetumours.org.uk/images/made/images/common/UC_370x280_800_600_s_c1.jpg)
Union Chapel Stand Up for Nerve Tumours UK Comedy Fundraiser
Check out the photos from World NF Day's Comedy Fundraiser at London's Union Chapel
Read More![](https://nervetumours.org.uk/images/made/images/common/Anthea__Emily_Owen_370x280_800_600_s_c1.jpg)
Working Together: from a tentative diagnosis and beyond
Emily Owen & her mother Anthea, recount their memories of Emily's NF2 diagnosis
Read More